Hi, my name is debw123! Scared about proposed cuts to PIP

Hi everyone, I am disabled and am so scared by proposed cuts to PIP, I am enhanced for both , but scored 2s in daily living, but having multiple problems is just as bad as having 1 serious problem. I pay for help to keep my house clean, for help with my many meds, help with ironing etc, and will no longer be able to live independently, as unable to do many things.

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PIP reform

March 2025

Labour Reforms

Comments

luvpink

https://forum.scope.org.uk/discussion/132582/hi-my-name-is-debw123

Hi and a very warm welcome to the community.

Most of us here are very worried especially about the proposed 4 point rule.

Robroy31

Hi Jackie here

My sons pip is up for review next year. How will it work the changes to pip? I know about the scoring of 4 points. If he is refused then does he get help to look for a job because we have tried when he was younger to get help from job centre we saw a disability advisor who could only recommend we look on the indeed job website. I don't know what Job he could do . He has lots of disabilities that would have to be taken into account. Does anyone have any advice please thanks a worried mum

anisty

You are getting ahead of yourself, @Robroy31 . First of all, these changes are proposed changes. They might come into effect, they might not.

Secondly, if they do come into effect, they don't start til November next year. If your son's award is up for review before then, he will be assessed on current criteria.

Regarding any work he could do, that depends on the nature of his disability and the opportunities in your area. Some supermarkets offer opportunities for those with learning difficulties. I have seen one or two young workers with Downs Syndrome at my local Asda, for eg.

My own son has a mild learning disability and also autism. It is very unlikely he could ever be in unsupported employment but he fills his week with a combination of voluntary work and paid, supported work in a social enterprise cafe.

He also had support via the Employability Support Network which was via our local council (Scotland)

If your son's disabilities are physical and he is cognitively able, check out job opportunities at your local council. They might offer a guaranteed interview scheme for disabled people.

It is not easy, but with determination it might be possible to find something.

Robroy31

Hi my son had leaukmia at 2 years old the chemo he had has left him with physical disabilities peripheral neuropathy in his feet legs arms and hands his hamstring on his right leg hasn't devolved its too short causes extreme pain in the last 8 years a swelling on his hip area has devolped which they thought might of been a tumour but its the nhs can't do anything they said he falls at lot too. His mouth was damaged by a dentist at 13 with pain that's so severe that will never go away he has dyspraxia and other disabilities he's 33 his mental health has deteriorated he's having counselling at present He so wishes there was a job suitable for him it's the extreme pain that's the problem thank you though I know I'm too far ahead but the money he gets from his pip pays for a chiropractor every week to try help the swelling

anisty

I understand how worrying these potential changes to welfare are for so many people but it sounds like your son has more severe disabilities and, remember, for severely disabled people PIP will continue.

Robroy31

Thanks very much for your advice.

Rosie_Scope

Hi @debw123, it's not an easy time and you're not alone in feeling scared about the proposals. Scope are campaigning about it through our Cost of Cuts campaigns and many other charities will be fighting for disabled people too. You can read Scope's letter to the chancellor and join in with our campaigns here:

The cost of cuts to disability benefits: Our open letter to the Chancellor | Disability charity Scope UK

I hope the community can be a place of support for you. As I mentioned, you're definitely not alone in your feelings here. Hope you're coping okay at the moment 💜

emc123

https://forum.scope.org.uk/discussion/comment/1013145#Comment_1013145

You say May or may Not but the 4 point Minimum is Not up for Consultation, it'll go ahead as there's Not even a Discussionon this, nor the LCWRA changes.

Andi66

I feel very depressed, with the cuts and what's happening in the world.

Catherine21

https://forum.scope.org.uk/discussion/comment/1013159#Comment_1013159

Your son will be ok with all his medical evidence and disabilities you can definitely prove he's not able to work

Robroy31

Thank you Christine 21 . What I think about is who will he get when doing the assessment. Last time he had an assessment the assessor asked him to walk we have a wheelchair for my son that we got through a referral from pain clinic it was facing the assessor to the side of her desk she asked him to walk he took 2 steps said he wanted to sit down. On his assessment it stated that he walked to end of room which wasn't true because if he had carried on walking he would of had to climb on her desk to say he could walk at least 25yds . So a dwp decision maker can only go with what they saw written down they choose to go with the medical evidence thank goodness he got mobility ( high) rate.

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