Hi, my name is Jayne56! Worried about bile acid malabsorption

Jayne56
Jayne56 Online Community Member Posts: 1 Listener

i had y gallbladder out last October and now I feel I have bile acid malabsorption. I’m taking physillium husk capsules once a day because of daily and evening meds I have to take. I’m in the UK and would like to speak to people in the same situation as I am. It’s effected my mental health as well I have terrible anxiety over it and worrying about nutrition and absorbing my meds

Comments

  • chiarieds
    chiarieds Online Community Member Posts: 16,754 Championing
    edited April 20

    Hi @Jayne56 - & welcome to the community. I wonder if you've had a conversation with your GP as to whether you do actually need to be careful with your diet as perhaps that would be an idea.

    There's some info here which may also be helpful to read: https://www.nhs.uk/conditions/gallbladder-removal/

  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 10,710 Championing
    edited April 20

    Hi @Jayne56 Welcome to the Community from me too. I had my Gallbladder removed in July 2023 and have acid reflux and bile reflux. I take a Proton pump inhibitor to help with this. I also have a hiatus hernia and ulcerative colitis which does not help.

    I have to be very careful what I eat. Nothing fried or spicy and no coffee or alcohol. I also only eat small meals several times a day instead of any large meals. I was told this by my Consultant who I see every six months.

    Could you keep a food diary to see if any particular food affects you more than others.

    If you are worried having a word with your GP might put your mind at rest as already advised.

    Please take care of yourself.

  • Holly_Scope
    Holly_Scope Posts: 1,951 Scope Online Community Coordinator

    Hi @Jayne56 welcome. 🙂 I just wanted to reiterate what @Bluebell21 has suggested in contacting your GP. It might be worth seeing if they can offer some support with the anxiety you're feeling at the moment too.

    I hope things improve for you. Please keep us updated (if you're happy to, of course).

    Best wishes,

  • Mary_Scope
    Mary_Scope Posts: 1,283 Scope Online Community Children and Family Specialists

    A warm welcome to the community @Jayne56 😃

  • Santosha12
    Santosha12 Online Community Member Posts: 972 Pioneering

    Hi @Jayne56 , I was suspected of having BAM (not related to my gallbladder exactly; I have 5 bowel diagnoses) and was referred to the Nuclear Medicine dept for a SehCAT scan, I didn't have BAM. You have to attend twice, exactly 7 days apart, swallowing a capsule the first visit when it's then checked via computer.

    Your GP could refer you, or your consultant gastroenterologist if you're still under the care of one.

    There is a charity called Guts UK who have a helpline too, they were very helpful to me.

    Wishing you all the very best, I understand the impact on our mental health, the impact on mine has been very tough. Take care.