The Impact of Disability Benefits Survey

AMurray
AMurray Online Community Member Posts: 3 Connected
edited May 8 in People power

Hi everyone!

My name is Alex and I am a disabled researcher working at Birkbeck. I look at disability benefits as well as our courts and tribunal systems. I am looking to gather peoples experiences of receiving disability benefits to examine the impact they can have on the wellbeing of disabled people.

I have made a short survey for people to complete if they receive Personal Independence Payment (PIP) or Adult Disability Payment (ADP). The survey asks what you spend it on and how it impacts on your work life, social life and how you feel about yourself and your life. You don’t have to answer all the questions, you can give as much detail as you want and you can save and go back later if you need more time to complete it.

The findings from the survey will be submitted to the government consultation into changes to disability benefits. So much of the conversation around this has been about the cost to the taxpayer, but not about how essential cash benefits are to disabled people and what impact they have on wellbeing. 

You can fill out the survey on MS Forms until the end of May, which has lots of accessibility features:

https://forms.office.com/e/7Kda0UzP6G

If you have any questions, you can also email me alex.murray@bbk.ac.uk 

Please share this with anyone else that you think might want to fill out this survey.

Image is a research flyer with information about the study. What is the purpose of the study? This study aims to gather people’s experiences of receiving Personal Independence Payment (PIP) or Adult Disability Payment (ADP) to highlight the impact that disability benefits can have on the wellbeing of disabled people. PIP is a cash benefit to help with the additional costs of disability. PIP was introduced in 2013, replacing Disability Living Allowance for adults. The ADP replaced PIP for those living in Scotland in 2022. The findings of the survey will be submitted as evidence to the consultation on changes to disability benefits being conducted by the Department for Work and Pensions at the end of June 2025. Who is carrying out the research? This research is being carried out by Dr Alex Murray, a disabled researcher at the Institute for Crime and Justice Policy Research (ICPR), Birkbeck, University of London. She looks into people’s experiences of the court system and disability benefit processes. Who can take part and how can I take part? Taking part in this research involves filling out an online survey on MS Forms. You can take part if you live in England, Wales, Scotland and Northern Ireland and receive PIP/ADP, or if you are responding on behalf of someone who does. If you want to take part in this research, you can contact Alex by emailing alex.murray@bbk.ac.uk or you can go direct to the survey by clicking on the link below. The survey can be completed until 31 May 2025. https://forms.office.com/e/7Kda0UzP6G
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Comments

  • AMurray
    AMurray Online Community Member Posts: 3 Connected
    edited May 8

    The link is here: https://forms.office.com/e/7Kda0UzP6G

  • Rosie_Scope
    Rosie_Scope Posts: 5,630 Scope Online Community Coordinator

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  • MW123
    MW123 Scope Member Posts: 1,153 Championing
    https://forum.scope.org.uk/discussion/comment/1026074#Comment_1026074

    Done.

  • mrsBB
    mrsBB Online Community Member Posts: 149 Empowering

    Started to complete the form, its going be a long one, I didn't realise just how much I pay out for extra essential items from PIP.

    As an example, my local council fitted a stairlift and bath lift through OH but will no longer pay for their yearly maintenance/breakdown insurance, its not cheap, the councils argument is - you get PIP, you will have to use that, fair enough but still annoying somewhat, in that if I lived in social housing a company is employed to take care of the yearly maintenance and breakdown for free. My OH assessor tried to argue this with my local council but she got nowhere so I pay as I need these. It wasn't until I started filling in the form that I realised just how much I actually do use PIP for.

  • AMurray
    AMurray Online Community Member Posts: 3 Connected
    https://forum.scope.org.uk/discussion/comment/1026268#Comment_1026268

    That's a really good example. I think there is a lot that we end up using PIP for that (in an ideal world) would be covered in other ways by local authorities, NHS etc. I think it is really useful to show the government these things because if they take away PIP for many people they cannot easily replace what it pays for!

    Not sure if this is too late for you, but you can save the form (just click through to the end) and come back to it! long answers are very much welcome!

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