Labour's backdoor changes to welfare : ((
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"I wish him no ill."
Thanks for that, Zipz
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How would you overhaul the NHS?
There are two obvious ways: higher income tax and higher NI contributions. The public are used to taxes going down.
The alternatives is to have a means-tested NHS rather like social care or not to give elective treatments free. The public wouldn't like those options either.
Could getting rid of the NHS in all but name and farming health care out to for-profit companies be a better way. I doubt it bu we might get it in an even more right-wing future.
Non-British residents are not necessarily treated for free on the NHS. In fact, major university research hospitals often gain both money and invaluable insight from non-British residents who need their expertise.
Ideas?
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I totally understand what your saying for us this is traumatic but for them they do 8 hours a day 5 days a weeks like autopilot I did commitments on phone was literally minutes she read out something I said yes and was done ID check done next will be payments and rent to check have you a journal? I did phone claim if you have a journal put on there about your conditions and how they effect you ie memory loss one day at a time there will be an end to this and done before Xmas let us know how you get om
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13:47 and they did not call. I called them and apparently they will call tomorrow. The lady on the UC help phone line said I cannot leave a message on my journal but that she can.
Is this standard procedure to not bother calling by these people when they call the shots ??. To me this is very rude.
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Sorry that's happened to you @jonf, that's so frustrating. Did they give you a time tomorrow that they'd call back?
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just in the afternoon some time but I doubt that they will call if they have found my ESA paperwork
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no call again. Does anyone have any suggestions. I am at hospital on Friday and the place is very close. Should I go in and wait after my hospital appointment.
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again they have not called as agreed. Ah well.
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Hi everyone,
Sorry I've not been back to read through all your comments about this, been down with something like covid, high temp several days, but ok now <coo, coo>
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Hugs n coos to you Albus : )) Sorry I've not been back sooner, been ill with covid or something. As for your comment, I'm guessing a lot of people like me given LCW are in a similar situation like me, unable to work + rather anxious about this. My local JC know full well I'm too disabled to do anything constructive. I don't mind "engaging" with them to update them on health, hospital appointments etc. That's perfectly understandable. But what is worrying is that they might insist that people like me undergo "courses" at jobcenters or whatever to make us "work ready", when we can't even get down to the jobcenter without a lot of pain, let alone attend courses. They accept this with me at present - appointments are by phone. I guess my personal anxiety is from witnessing how govs have behaved in the past like this. I was in the support group for years under ESA before migration to UC, but criteria have been changed and a lot of us now are excluded from being classed as LCWRA. No doubt all will be revealed in due course…
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So sad about your Dad Cath. And it affects everyone else around doesn't it? Everyone suffers, and much of that is watching your Dad suffering : ((( <hugs> for all you've been through.
There can be help for this sort of thing. It might not take it away completely but it could be controlled or reduced so it doesnt have such a catrastrophic affect. The overwhelming problem in this country is lack of funding. You have to wait for years before you can access any effective help, if at all. Politicians really need to wake up and recognise the devastation this has on families + communities, and how much more this costs than putting enough funding in place to make a real difference.
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"Depression and anxiety are not "the blues". They frequently have a neurological base as does autism. "
Absolutely right Zipx <flapping wings>
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Ohno, I hope you're recovering well, I'm still testing positive for covid nearly two weeks later, it's not fun!
I can of course only speak from my own experiences, but I was turned down for LCW, despite being very unwell mentally and physically, but part of me still really wanted to try to work. And I kept pushing myself and eventually found a really good starter, work from home job to ease me into working life gently. It's made such a difference to my mental health too. Along with a lot of therapy of course. 😆But I do understand it will be very different for each person, so I do worry some people will be all dumped into the same category of "help", despite having very different needs.
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Oh dear, keep warm Albus, covid can be rough. I felt pretty bad the last week or two, make yourself a snug nest and take things easy, lots of sleep helps.
As for your own experience, sounds as though you've made really big strides + that's great : )) I'm sure you've never looked back, and I know from experience what a big difference it can make to your whole outlook on life, so hats off to you Albus I bow my head (beak) : ))
As for myself, unfortunately trying to do anything like that would bring too much pain at the moment, and would probably make conditions worse. I'm ticking off dates until I can finally get to hospital appointments, and have to wait for operations that will only be done once consultations give the all-clear. I'd love to have a more "normal" life" and be independent again, but it's chasing shadows at the moment. My only concern is that these new reforms will push people like me too hard in their eagerness to get us off welfare + make our conditions worse.
But big hugs to you Albus + nurse that covid xxx
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Thanks @FeistyPigeon I understand my situation is quite specific and will be very different to the next persons, but there's hope for others at least!
Hopefully the NHS wont keep you waiting around for too long, I know how horrible the constant waiting can be. ❤️1 -
Hi I hope your well yes its so sad and I see myself in him which was one thing I didnt want tbh but its so ingrained I try to break free but isolation is the only way as I really do not fit into society I can mask for 40 minutes pretend to be bubbly funny confident but that 40 minutes kills me and I have to retreat its so hard when its invisible as you get gaslighted so much
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Hi Cath,
Very late reply but I can understand to a certain extent just what you're going through. My brother has autism and masks habitually, and get very frustrated when his reactions aren't "appropriate" for the situation. I can imagine it must be exhausting for you too, and perfectly understandable you want to shield yourself against all that. There's one good thing, thanks to people like Chris Packham, there seems to be more awareness now of the struggles that people like yourself + my brother face. Maybe you could get some help on the NHS with coping strategies for difficult situations? My brother's been trying but they seem to be keeping him waiting for ever. We need to keep up the pressure with governments to invest a lot more in this sort of thing. I know a lot of you, like yourself and my brother, are thoughtful, intelligent and talented people, and all that is going to waste while they leave you struggling. And society should be adapting to enable you all to lead happier lives, not having to feel you've got huge hurdles to scramble over just to get through the day. My best wishes to you xx
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Hey how are you all ok ? Missed you yes ive been seeing a psychiatrist at first I thought she was bad but she actually got me to open up very painful and referred me for assessment with two ladies last week I told them everything things I hadn't ever spoke about and definitely the masking its impossible to drop so I come across as well put together I thought they wasnt going to offer any therapy as they said I had certain issues and would have to be in right frame of mind ?? Well thats impossible anyways I think my psychiatrist pushed for it im on a waiting list for trauma therapy but yes its so hard becasue the shame is horrific I hope your brother manages to get therapy but to be honest I zone out all the time
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Hi Cath, sounds as though you've really been through the mill in the past, don't blame you at all for zoning out, it's just your body protecting you from further anguish. But your psychologist sounds very consciencious, so you're very lucky on that score. When you have another session with her or someone else, if they push too hard best thing is just to tell them it's too much for you and ask them to stop. They will have to learn to take things at your pace, not to rush things because of pressure of time.
You might have some undiagnosed autism too, given all the masking. A lot of people are on the spectrum, probably I've got some aspects of it as I can't stand a lot of noise or bright lights (so supermarkets, hospitals etc can feel rather overwhelming), though I don't need to mask or have all the problems my brother has. My brother was only diagnosed about 10 years ago (he's in his 50s now), a lot of our generation went undiagnosed, especially women, so you might fall into that category. If you are, it would certainly be worth getting a diagnosis as it might help in lots of other ways.
Thanks for your kind words about myself, I'm still struggling with the tremor etc, it can get you down but I try to keep myself busy + take my mind off it as much as I can. Appointment with neurologist in just a few weeks now, woopee! after a year-long wait. But for now I have to really restrict time on the computer or the tremor escalates + stops me sleeping and everything.
But good to hear you sound as though things are moving in the right direction, although I'm sure a really painful process for you to get through. Take it one step at a time Cath and remember we're all here at Scope to give you support xxx
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OOh goodluck at your appointment i hope you get the treatment you deserve yes I agree keeping busy helps xx
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