I'm 66 and have left sided Hemiplegia. For about the last 10 years I've had increasing problems with weakness/ spasticity on that side of my chest. I call it a 'wraparound' pain. I slump to the left, the pain goes down my neck, under the bust, over the shoulder and up into my head. My chest feels like concrete. I don't have the energy to eat or even have the energy to breathe??? I feel sick but avoid vomiting due to the chest pain. I'm also scared of getting a throbbing headache. These have been the bane of my life. Choking fits/dental issues are now part of the problem. Over the years, GP's and physio's have told me 'it's muscular' . I concede that stress plays a part, but muscle tension is part of my condition and is affected by tiredness and weather fluctuations.
I actually saw a GP recently. He wouldn't adjust my meds or make a referral anywhere ( I had an injection in March 2020 which was really helpful with this chest pain but this doctor said it wasn't needed. He said I should contact a Consultant from the Neurolgy dept at the local hospital as they don't like GP's to interfere with their care plans. I'm due an annual review very soon but it's always with the same nurse. She's very clear about scarce resources going to patients in most need and marks me down for attending the clinic alone and travelling by bus. I live alone and strive to continue having an independent mindset, but now I'm thrown by this awful chest pain and the thought of not getting any medical care or advice.
When did GP's lose the ability to prescribe meds? I don't understand and fear ever getting past this nurse and her scorecard. Any advice would be welcome.
