Husband my carer works full time but at a standstill

Freedom2Waffle

Hi everyone

My first input

I'm on pip, ESSA, nothing else I still have to pay for my medication

I have a neurological condition FND and NEAD, plus other stuff plus lesions right of brain, anyway after a week of him calling 999 as had some hurendous none epidemic sezures, one point giving me cpr then week in hospital on a dementia ward and treated by staff as if I was mush for brains, plus walk passed me ignoring me when having sezure by night staff ... yes reported them. My husband is now registered as my carer at drs and to get help first need to show letter from Dr that he is, ow letter will cost £35, we cant any help on or off line for him to get advice from other FND carers. So why be registered at drs

BBefore suggesting things to apply for, we're not entitled to anything as works full time plus private pension yet if wasnt working he we would be entitled to go much Inc free medication, he's now app,ied to speak to someone as his mental health is at an all time low, not just because of me, but found out 3 days after his mom died she had passed away p,us suffers with sad seasonal depression

I feel the system is wrong it should help all unpaid carer not just those who don't work or low income

Take care everyone thanks for reading

Chris75_

I am not an expert but it says on gov uk that earning over £196 pw makes one ineligible to claim CA.

Mary_Scope

Hi @Freedom2Waffle and a warm welcome to the community from me!

Thank you for telling us a little bit about your situation. There is some support out there for unpaid carers although not really financially but there is Carers Trust who do offer some good support and information

It's lovely to have you here on the community and I hope you enjoy your time on here!

Rosie_Scope

Hi @Freedom2Waffle, sorry to hear about all that's going on with you and your husband. It does seem unfair sometimes when carers give so much of their time to care for someone they love.

What happened to you sounds really traumatic for you both and it sounds like your husband has been dealing with a lot alongside his loss. I've popped you an email with some resources in case that's useful to you both. I hope the mental health support comes through soon.

When it comes to prescriptions, I know it's not the same as getting free prescriptions but you can sometimes save money if you use a pre-payment certificate: https://www.nhsbsa.nhs.uk/help-nhs-prescription-costs/nhs-prescription-prepayment-certificate-ppc

It covers the cost of your prescriptions for a certain time, so if you're on multiple medications it can save you a bit of money.

Kimi87

He can request an assessment of his needs as carer, this is free and he is entitled regardless of working or benefits status.

https://www.nhs.uk/social-care-and-support/support-and-benefits-for-carers/carer-assessments/

Lauren29

https://forum.scope.org.uk/discussion/comment/1076919#Comment_1076919

I would recommend that you check if there are any Carers Groups in your area. I suggested that a friend contact her local group and she has found them very helpful and supportive both practically and emotionally.