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Feeling guilty as a carer when you’re exhausted – how do you reset?
I care for my parents alongside a full-time job and, most days, I just about manage. But every now and then I hit a wall and feel completely worn out. On those days I’m not as patient as I’d like to be with my dad, and afterwards I feel really guilty. I know I’m not the only one juggling work, caring and trying to have…
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Universal credit : Carers element
If you receive high rate care component of PIP for yourself so you receive limited capability for work also and you look after a disabled child who gets PIP, high rate care and mobility, you receive Carers allowance for them are you entitled to the care element for them also, or no because you get the limited capability…
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Carers Assesment
Hello Hoping For some advice . I’ve cared for my husband pretty much solely since he had his life changing RTA accident 19 months ago. He got lost in the system as I only found out two months ago and thought it was normal the way I had it deal with everything . Anyhow, adult social care team and the occupational therapy…
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Care contribution dispute
Hi all, I recently had a care assessment with my local social care team (greater london borough), and I have been awarded some hours of care — from a relative We are currently in the process of working out my expenditures and finding out how much the council might want me to contribute towards my care, I am feeling a bit…
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Carer element of UC
My mum (71)claims her pension, AA (lower rate) and pension credits (as she claims AA) I am on UC, work 15 hours a week. My question is... if I claim the carers element of UC for her for being her carer (not carers allowance) does anyone know how this would affect her benefits? Which benefit would she potentially lose?…
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Direct Payments
I believe Ive got myself into a sticky situtation. We astarted getting these payments in the pandemic and tgeyve never been reviewd..I have been using them for cleaning products and care items instead of a respite carer for me...what can i do?
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Parents, carers & teachers - your thoughts on children's adaptive fashion?
If you are a parent, carer, teacher or work with children (aged 7-16) with a disability I would love to hear your experiences, insights and wants/needs with children's adaptive fashion. I am doing my University dissertation on the need for more adaptive fashion for children on the UK high street. I want to bring attention…
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Council Tax Carers Discount - MSE
Saw this on via the Money Saving Expert email and thought it was worth sharing. Martin Lewis: Don't trust councils' online info about the Council Tax Carers Discount – one in five English and Welsh councils get it wrong Click on link for full story..…
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Pension credit
Hello, i’m trying to get some advice please as i seem to be getting different answers, i’m currently in the process of claiming carers element in order to care for my mum full time, i’m currently on UC and put the claim in via my UC, when speaking to citizen advice they’ve told me claiming carer element wouldn’t completely…
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Nina’s law
Hi everyone Nina’s law is a campaign I’ve been running since October 2024 please sign and share, the goal is to ensure access to carers during any hospital trips for people with complex care needs all over the country
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Wife/Carer going into hospital - what to do ?
My wife/carer may have to go to hospital (her shoulders and hips are bad) - what would I do ? She is currently at her GP. Bearing in mind that I am virtually immobile and can't speak on the phone either - I am useless at virtually everything else that I try…. I also would be unable to visit her in hospital - because of my…
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Pip carers
Hi , my dad is my carer he claims uc and has transitional protection when he moved over from legacy , my pip is up for review if I lose it will he lose the transitional protection, he claims carers allowance and has a pension which uc deducts
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Home care and late-evening calls
Hello, Are there any home care agency users out there who have "late" evening visits — i.e. 10:30? I find it difficult to find a company that will come at a time I feel appropriate for my (middle) age. Anything after 9pm — 8pm with some — seems to be as if they're making a special allowance, and it's really restrictive.…
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Carers To Have Their Cases Reassessed
https://www.theguardian.com/society/2025/nov/25/dwp-to-reassess-hundreds-of-thousands-of-cases-in-carers-allowance-scandal
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✍️Carers Rights Day - Information for Parents & Carers of Disabled Children✍️
Today is Carers Rights Day and this years theme is "Know your rights, use your rights." For parents and carers of disabled children, knowing your rights and how to use them is so important to make sure that you and your child are getting as much support as possible. Your Right to an Assessment One of the most important…
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Wife given UC job focused interview - both care for children. Is this right?
Myself getting PIP advance rate for carrying and lower rate for mobility I have a seven year old son autistic nonverbal. He gets DLA higher rate for caring and mobility and I have four year-old son who get DLA middle rate for caring only and 1/5 year baby we claim with my wife as a joint clime . I am getting careers…
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Daughters carer and struggling to live - LCWRA
This discussion was created from comments split from: Advice for claimants RE: disabled carer’s TP errosion due to LCWRA addition .
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Husband my carer works full time but at a standstill
Hi everyone My first input I'm on pip, ESSA, nothing else I still have to pay for my medication I have a neurological condition FND and NEAD, plus other stuff plus lesions right of brain, anyway after a week of him calling 999 as had some hurendous none epidemic sezures, one point giving me cpr then week in hospital on a…
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Hi, my name is Ang1336! Can we claim disability premiums?
hi my husband claimed CA for me as my carer he stopped claiming on 22nd August up till he got his pip at standard rate,and has now applied for new style esa ,he’s been told that because he’s on pips he will go into the support group.I also get pips but enhanced on both, I’m also in the support group. Can claim disability…
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financial assessment for care costs - is it worth it?
Hi all I'm currently completing a financial assesment for my care needs (non residential, in Nottinghamshire county council). I haven't sent in my form yet as when I got to filling in almost the last page, they did a rough calculation of much I may have to pay towards my care - I think it was a cap, but it really shocked…
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Overwhelmed by employing PA
Hi there, I'm wondering if anyone has any advice for adjusting to having a PA? I've had a PA (via direct payments) since like the beginning of the year. We increased our contact hours gradually to give me time to adjust, but I'm having a really hard time with it. It's support that I've needed for a long time now, but I…
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Relationship of myself and my partner
Me and partner have 24hr care each and live together his through agency mine through direct payment. Apparently according to his agency I no say on his carers. As long he happy that it. Now owner says there issues bought up at his team meeting demanding to see me. If not
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Hi, my name is simon44!
Hi i work full time and also care for my wife and receive the carer element of universal credit and im considering giving up work to care for her full time and im worried how to go about it as we also receive universal credit as im on minimum wage, so if i stop work to look after her would our universal credit stop ,any…
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Support and cmht
IIf Somebody has impairments and disability. Can't use Internet phone or access outside world without support. They have no support network or family or friends and are totally reliant on cmht to support with call Internet to out side world Here's problem awaiting social services asessment have sufficient evidence.…
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PA rate of pay for more complex tasks
Hi I am autistic and will be having a PA for half a day on average a week to help with tasks requiring strong spoken and written language skills such as assisting me at meetings, writing formal letters, assisting me as a litigant in person at a tribunal etc - all for things, I cannot get help for, through local advocacy…
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🧠Parent & Carer Wellbeing and Mental Health - Summer Holiday Support🧠
Part One - Summer Holiday Support Series Introduction Part Two - Accessible Days Out for Parents and & Carers of Disabled Children Part Three - Keep Routine At Home in the Summer Holidays Part Four - Sensory Friendly and Accessible School Uniforms (Where To Buy) Part Six - Emotionally Preparing Your Child To Go Back to…
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need help for my Visual impairment adult son
Hello I have a son age31 still living at home with visual impairment with possibility of autism/ADHD, I'm really looking for help for his mental wellbeing for him to begin living independently as I now have have my own health issues and he's getting to much for me, as i find him very challenging when he becomes angry and…
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Direct payments and Universal Credit
Question: about Universal Credits Do we declare our Daughters Direct Payments (Self Directed Support) when making a Money savings and investments declaration? Under: https://www.gov.uk/guidance/universal-credit-money-savings-and-investments#welfare-support-payments It states things you must tell us about and things you…
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UC Claim Commitment for Carer's
Good Afternoon all. I'm a FT carer for my disabled partner. My partner is receipt of PIP [enhanced for both components], and I'm in receipt of CA. We've just successfully navigated the managed migration process from ESA to UC. I believe the final step in this transition is a claims commitment for us both. My question is…
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Carer
If your carer of a year disappeared without responding to emails and phone, what would you do? I haven't seen mine since 12/6. There are a few items here.
