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need help for my Visual impairment adult son
Hello I have a son age31 still living at home with visual impairment with possibility of autism/ADHD, I'm really looking for help for his mental wellbeing for him to begin living independently as I now have have my own health issues and he's getting to much for me, as i find him very challenging when he becomes angry and…
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UC Claim Commitment for Carer's
Good Afternoon all. I'm a FT carer for my disabled partner. My partner is receipt of PIP [enhanced for both components], and I'm in receipt of CA. We've just successfully navigated the managed migration process from ESA to UC. I believe the final step in this transition is a claims commitment for us both. My question is…
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Carer
If your carer of a year disappeared without responding to emails and phone, what would you do? I haven't seen mine since 12/6. There are a few items here.
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⭐️Summer Holiday Support - An Introduction for Parents & Carers of Disabled Children ⭐️
Part Two - Accessible Days Out For Parents & Carers of Disabled Children Part Three - Maintaining Routine in the Summer Holidays Part Four - Sensory Friendly and Accessible School Uniforms We’re at least a week into the summer holidays now, perhaps even longer for some of you! How is it going? The summer holidays can be a…
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re-enablement bad visit - advice
Hi I wonder if anyone can give me advice, I'm on my third week of re-enablement after requesting a care needs assesment due to various disabilities and health issues including but not limited to CFS and ADHD. The re-enablement is one visit per day geared around food/meal prep at around 5.30pm. Prior to this I didn't have…
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Hi, my name is mumsii! Need some advice, son - registered carer for his partner(disabled) on UC...
hi, Need some advice, son - registered carer for his partner(disabled) on UC- he works 12 hours. If he cannot go to work( due to partners ill health) the lost income is made up by UC. He has recently been told his place of work is to close for refurb for 2 weeks-3 options given to staff 1- take holidays over the time…
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University in September BUT no social care in place
Hi there, I'm due to start university in September. I've been on the waiting list for a social care need assessment for a year now with no sign of reaching the top of their list. I'm unsure what to do. If I defer I'm stuck in my parents home where I have no independence, struggle with the stairs, live in a very rural area…
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Direct Payments - for or against?
I will be attending an LA meeting soon, representing self-directed support using Direct Payments. Any suggestions as to what works, how well your LA administer it and are you encouraged to use it. For example this is on my LA website relating to Direct Payments:- "It’s important you read the terms and conditions that come…
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Help around my 'home'
I am struggling a bit to manage household tasks (due to poor hand functioning and strength) and am unsure where to look for things that may help me. Things like cleaning, hoovering, taking out waste, changing bedding - that type of thing. I'm wondering whether there are tools/equipment that people find really useful for…
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Experiences with a personal assistant?
Hi everyone! I've been working with a development worker for some time and did a strengths and needs assessment a few months ago and we have kept talking about potentially getting a personal assistant, but I'm really unsure on it and I was looking for advice. My view is a little bit someone or muitple people of different…
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Hello there
I just wanted to introduce myself. My name is Justyna and I have had breast cancer in 2017 followed by 6 rounds chemo, lumpectomy with lymph nodes removal and radiotherapy. Finished all treatments in March 2018. Thereafyer, I was waiting to go back to work and my normal routine but that never happened, and my body did not…
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Bathroom access
I have a disabled man who has one leg visit my local pub. He has a mobility scooter. There is a disabled toilet located in the womens toilet .The gentleman cannot get out of his mobility scooter without support.The pub gives consent for him to use the ladies toilet but he cannot get out of the scooter unaided and he comes…
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Overwhelmed with employing a PA.
Hi everyone, I am so overwhelmed with becoming an employer with my direct payments. I feel I have a very unique set of circumstances and I desperately need help in fully understanding things. I have recently been awarded direct payments, I feel my situation is unique, because my PA is also my friend, I take up a lot of my…
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Poor quality careers
My mother in law came out from hospital a week ago with a reablement package of 4 times a day and over night sleep in for up to six weeks she never should have come home as she is very ill. Any way the Carrers never turn up on time and some times never come they speak very little english its difficult to speak to them and…
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Hi, my name is Taj!
Helo I get PIP and I did have a carera but that person I have to remove so she is no longe wanted to care for me I need to claim the carera money for My self and ti pay Family and Friends privately come and cook and clean. And cut My nails wash my clothes giv me medicine thanks
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Support worker closed? Due to new government rules
apparently my support worker had to close her support? Because of new government rules and apparently my disability doesn’t get accepted? What a joke… it’s beyond depressing and upsetting, I have a learning disability and if I got put into work tomorrow I wouldn’t go, I’d get anxious I’d kick off and probably have a…
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Hi, my name is Francisx! I am a middle age man with severe Osteoarthritis...
I am a middle age man with severe Osteoarthritis. I am also a carer for my mother with Alzheimer, epilepsy and now lung cáncer. I am increasingly struggling in my daily life, physically and mentally with my condition. Also this is affecting my ability to care for my mum, who needs 24/7 care. I am worried that I won't be…
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PA rate of pay for more complex tasks
Hi I am autistic and will be having a PA for half a day on average a week to help with tasks requiring strong spoken and written language skills such as assisting me at meetings, writing formal letters, assisting me as a litigant in person at a tribunal etc - all for things, I cannot get help for, through local advocacy…
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Happy Best Friends Day - Disabled Children and Friendships 😀👯♀️
Happy Best Friends Day! Making friends can be tough for anyone, but there can be extra hurdles for disabled children. These may include things like accessibility issues, social barriers or a general lack of awareness or understanding. If your child doesn’t make friends right away, especially when they’re young, please…
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Paying enhanced maternity pay to carer from a personal payment
Hello I employ carers to look after my disabled daughter 24/7 One if the staff works 37.5 hrs week. she is currently on maternity leave and is struggling with the loss of income. I want to pay her enhanced maternity pay she has worked for my daughter for 20 yrs. we have a personal payment not a direct payment. can i do…
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Designing Digital Services For Parents of Disabled Children - Survey
Hi everybody😀 I have recently started a new course called Designing Digital Services and I am particularly interested in creating digital services for parents and carers of disabled children. I have created a very short survey which I have linked below that I hope will give me more insights and information on the sorts of…
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Disabled Children and Sleep - Practical Sleep Strategies for Parents and Carers🌙😴
Part One - Disabled Children and Sleep - An Introduction😴🛌 Part Three - Services and Signposting Support😴💤 As part of our focus on sleep this week, this blog post is all about practical sleep strategies you can try at home. You don’t need to do everything, just pick and choose what feels manageable and see what works best…
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Disabled Children and Sleep - Services and Signposting Support😴💤
Part One- An Introduction😴🛌 Part Two - Practical Sleep Strategies for Parents and Carers🌙😴 As our final post for sleep week, we are going to look at signposting and services available to help families caring for disabled children. Specialist Help with Sleep Cerebra has free sleep service and offer individual support for…
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What happens if you need care, but your relatives die?
HI, I'm not sure where I should post this question. I'm sure it's a situation most have thought about, and some experienced. I'm currently bedbound due to my disabilities. My parents have been helping me survive daily. But now my Mum as been ill for a couple of years and my Dad is getting old, the question of what would…
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Disabled Children and Sleep - An Introduction😴🛌
Part Two- Practical Sleep Strategies for Parents and Carers🌙😴 Part Three - Services and Signposting Support😴💤 This weeks focus on the family side of the community is sleep. If your child struggles to fall asleep, stay asleep or wakes frequently throughout the night, you’re definitely not alone. Sleep difficulties are…
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Standing Frames Research
Standing Frame Research for Cerebral Palsy We are looking for young people and parent/carers with recent experience of using standing frames to get involved in co-producing research about the effectiveness of standing frame programmes. Contact: rachel.rapson@nhs.net or phone 07971246592
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Migration from ESA to UC
Theres a question "do you claim carers allowance" on the ESA to UC online form. We both care for each other & get carers premium added onto the ESA claim. How do we answer this, as theres no option to answer about carers premium. We both get SDP & Carers Premium. My husband is 71 & gets state pension. I'm 61 & hes on my…
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Hi there
I’m on lwcra but I have the unfortunate dealings with a UC Review not the LWCRA but the UCR agent has given a pause of the review and for me to have opportunity to get my carers bank statements of 4 months I have explained that due to the carer being unavailable and away I can’t obtain these documents the bank account is…
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Hi, my name is hev548!
hi . my council housing said i could stop paying them £70 a mth for my 3rd bedroom as my disabled daughter and has a carer stay to help 2:-3 days week . next thing the universal credit has take. £70 off my benefit to pay the housing with it . ..i’ve rang the uc and asked why and they just keep saying . because they’re…
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Managing direct payments
Hi So i have been approved for DP and had the financial assessment but the social worker at the council has said that they will now pass the referral onto people plus who will contact me about DP set up etc. As far as i have read online about them they will manage everything on my behalf is this correct? They have soo many…
