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Wife/Carer going into hospital - what to do ?
My wife/carer may have to go to hospital (her shoulders and hips are bad) - what would I do ? She is currently at her GP. Bearing in mind that I am virtually immobile and can't speak on the phone either - I am useless at virtually everything else that I try…. I also would be unable to visit her in hospital - because of my…
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Pip carers
Hi , my dad is my carer he claims uc and has transitional protection when he moved over from legacy , my pip is up for review if I lose it will he lose the transitional protection, he claims carers allowance and has a pension which uc deducts
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Universal credit : Carers element
If you receive high rate care component of PIP for yourself so you receive limited capability for work also and you look after a disabled child who gets PIP, high rate care and mobility, you receive Carers allowance for them are you entitled to the care element for them also, or no because you get the limited capability…
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Feeling guilty as a carer when you’re exhausted – how do you reset?
I care for my parents alongside a full-time job and, most days, I just about manage. But every now and then I hit a wall and feel completely worn out. On those days I’m not as patient as I’d like to be with my dad, and afterwards I feel really guilty. I know I’m not the only one juggling work, caring and trying to have…
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Home care and late-evening calls
Hello, Are there any home care agency users out there who have "late" evening visits — i.e. 10:30? I find it difficult to find a company that will come at a time I feel appropriate for my (middle) age. Anything after 9pm — 8pm with some — seems to be as if they're making a special allowance, and it's really restrictive.…
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Carers To Have Their Cases Reassessed
https://www.theguardian.com/society/2025/nov/25/dwp-to-reassess-hundreds-of-thousands-of-cases-in-carers-allowance-scandal
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✍️Carers Rights Day - Information for Parents & Carers of Disabled Children✍️
Today is Carers Rights Day and this years theme is "Know your rights, use your rights." For parents and carers of disabled children, knowing your rights and how to use them is so important to make sure that you and your child are getting as much support as possible. Your Right to an Assessment One of the most important…
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Wife given UC job focused interview - both care for children. Is this right?
Myself getting PIP advance rate for carrying and lower rate for mobility I have a seven year old son autistic nonverbal. He gets DLA higher rate for caring and mobility and I have four year-old son who get DLA middle rate for caring only and 1/5 year baby we claim with my wife as a joint clime . I am getting careers…
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Daughters carer and struggling to live - LCWRA
This discussion was created from comments split from: Advice for claimants RE: disabled carer’s TP errosion due to LCWRA addition .
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Husband my carer works full time but at a standstill
Hi everyone My first input I'm on pip, ESSA, nothing else I still have to pay for my medication I have a neurological condition FND and NEAD, plus other stuff plus lesions right of brain, anyway after a week of him calling 999 as had some hurendous none epidemic sezures, one point giving me cpr then week in hospital on a…
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Hi, my name is Ang1336! Can we claim disability premiums?
hi my husband claimed CA for me as my carer he stopped claiming on 22nd August up till he got his pip at standard rate,and has now applied for new style esa ,he’s been told that because he’s on pips he will go into the support group.I also get pips but enhanced on both, I’m also in the support group. Can claim disability…
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financial assessment for care costs - is it worth it?
Hi all I'm currently completing a financial assesment for my care needs (non residential, in Nottinghamshire county council). I haven't sent in my form yet as when I got to filling in almost the last page, they did a rough calculation of much I may have to pay towards my care - I think it was a cap, but it really shocked…
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Overwhelmed by employing PA
Hi there, I'm wondering if anyone has any advice for adjusting to having a PA? I've had a PA (via direct payments) since like the beginning of the year. We increased our contact hours gradually to give me time to adjust, but I'm having a really hard time with it. It's support that I've needed for a long time now, but I…
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Relationship of myself and my partner
Me and partner have 24hr care each and live together his through agency mine through direct payment. Apparently according to his agency I no say on his carers. As long he happy that it. Now owner says there issues bought up at his team meeting demanding to see me. If not
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Hi, my name is simon44!
Hi i work full time and also care for my wife and receive the carer element of universal credit and im considering giving up work to care for her full time and im worried how to go about it as we also receive universal credit as im on minimum wage, so if i stop work to look after her would our universal credit stop ,any…
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Support and cmht
IIf Somebody has impairments and disability. Can't use Internet phone or access outside world without support. They have no support network or family or friends and are totally reliant on cmht to support with call Internet to out side world Here's problem awaiting social services asessment have sufficient evidence.…
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PA rate of pay for more complex tasks
Hi I am autistic and will be having a PA for half a day on average a week to help with tasks requiring strong spoken and written language skills such as assisting me at meetings, writing formal letters, assisting me as a litigant in person at a tribunal etc - all for things, I cannot get help for, through local advocacy…
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🧠Parent & Carer Wellbeing and Mental Health - Summer Holiday Support🧠
Part One - Summer Holiday Support Series Introduction Part Two - Accessible Days Out for Parents and & Carers of Disabled Children Part Three - Keep Routine At Home in the Summer Holidays Part Four - Sensory Friendly and Accessible School Uniforms (Where To Buy) Part Six - Emotionally Preparing Your Child To Go Back to…
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need help for my Visual impairment adult son
Hello I have a son age31 still living at home with visual impairment with possibility of autism/ADHD, I'm really looking for help for his mental wellbeing for him to begin living independently as I now have have my own health issues and he's getting to much for me, as i find him very challenging when he becomes angry and…
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Direct payments and Universal Credit
Question: about Universal Credits Do we declare our Daughters Direct Payments (Self Directed Support) when making a Money savings and investments declaration? Under: https://www.gov.uk/guidance/universal-credit-money-savings-and-investments#welfare-support-payments It states things you must tell us about and things you…
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UC Claim Commitment for Carer's
Good Afternoon all. I'm a FT carer for my disabled partner. My partner is receipt of PIP [enhanced for both components], and I'm in receipt of CA. We've just successfully navigated the managed migration process from ESA to UC. I believe the final step in this transition is a claims commitment for us both. My question is…
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Carer
If your carer of a year disappeared without responding to emails and phone, what would you do? I haven't seen mine since 12/6. There are a few items here.
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⭐️Summer Holiday Support - An Introduction for Parents & Carers of Disabled Children ⭐️
Part Two - Accessible Days Out For Parents & Carers of Disabled Children Part Three - Maintaining Routine in the Summer Holidays Part Four - Sensory Friendly and Accessible School Uniforms Part Five - Parent & Carer Wellbeing In The Summer Holidays Part Six - Emotionally Preparing Your Child To Go Back To School Part Seven…
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re-enablement bad visit - advice
Hi I wonder if anyone can give me advice, I'm on my third week of re-enablement after requesting a care needs assesment due to various disabilities and health issues including but not limited to CFS and ADHD. The re-enablement is one visit per day geared around food/meal prep at around 5.30pm. Prior to this I didn't have…
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Hi, my name is mumsii! Need some advice, son - registered carer for his partner(disabled) on UC...
hi, Need some advice, son - registered carer for his partner(disabled) on UC- he works 12 hours. If he cannot go to work( due to partners ill health) the lost income is made up by UC. He has recently been told his place of work is to close for refurb for 2 weeks-3 options given to staff 1- take holidays over the time…
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University in September BUT no social care in place
Hi there, I'm due to start university in September. I've been on the waiting list for a social care need assessment for a year now with no sign of reaching the top of their list. I'm unsure what to do. If I defer I'm stuck in my parents home where I have no independence, struggle with the stairs, live in a very rural area…
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Direct Payments - for or against?
I will be attending an LA meeting soon, representing self-directed support using Direct Payments. Any suggestions as to what works, how well your LA administer it and are you encouraged to use it. For example this is on my LA website relating to Direct Payments:- "It’s important you read the terms and conditions that come…
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Help around my 'home'
I am struggling a bit to manage household tasks (due to poor hand functioning and strength) and am unsure where to look for things that may help me. Things like cleaning, hoovering, taking out waste, changing bedding - that type of thing. I'm wondering whether there are tools/equipment that people find really useful for…
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Experiences with a personal assistant?
Hi everyone! I've been working with a development worker for some time and did a strengths and needs assessment a few months ago and we have kept talking about potentially getting a personal assistant, but I'm really unsure on it and I was looking for advice. My view is a little bit someone or muitple people of different…
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Hello there
I just wanted to introduce myself. My name is Justyna and I have had breast cancer in 2017 followed by 6 rounds chemo, lumpectomy with lymph nodes removal and radiotherapy. Finished all treatments in March 2018. Thereafyer, I was waiting to go back to work and my normal routine but that never happened, and my body did not…
