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Disabled Children and Sleep - Services and Signposting Support😴💤
Part One- An Introduction😴🛌 Part Two - Practical Sleep Strategies for Parents and Carers🌙😴 As our final post for sleep week, we are going to look at signposting and services available to help families caring for disabled children. Specialist Help with Sleep Cerebra has free sleep service and offer individual support for…
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Designing Digital Services For Parents of Disabled Children - Survey
Hi everybody😀 I have recently started a new course called Designing Digital Services and I am particularly interested in creating digital services for parents and carers of disabled children. I have created a very short survey which I have linked below that I hope will give me more insights and information on the sorts of…
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Disabled Children and Sleep - Practical Sleep Strategies for Parents and Carers🌙😴
Part One - Disabled Children and Sleep - An Introduction😴🛌 Part Three - Services and Signposting Support😴💤 As part of our focus on sleep this week, this blog post is all about practical sleep strategies you can try at home. You don’t need to do everything, just pick and choose what feels manageable and see what works best…
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What happens if you need care, but your relatives die?
HI, I'm not sure where I should post this question. I'm sure it's a situation most have thought about, and some experienced. I'm currently bedbound due to my disabilities. My parents have been helping me survive daily. But now my Mum as been ill for a couple of years and my Dad is getting old, the question of what would…
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Disabled Children and Sleep - An Introduction😴🛌
Part Two- Practical Sleep Strategies for Parents and Carers🌙😴 Part Three - Services and Signposting Support😴💤 This weeks focus on the family side of the community is sleep. If your child struggles to fall asleep, stay asleep or wakes frequently throughout the night, you’re definitely not alone. Sleep difficulties are…
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Standing Frames Research
Standing Frame Research for Cerebral Palsy We are looking for young people and parent/carers with recent experience of using standing frames to get involved in co-producing research about the effectiveness of standing frame programmes. Contact: rachel.rapson@nhs.net or phone 07971246592
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Migration from ESA to UC
Theres a question "do you claim carers allowance" on the ESA to UC online form. We both care for each other & get carers premium added onto the ESA claim. How do we answer this, as theres no option to answer about carers premium. We both get SDP & Carers Premium. My husband is 71 & gets state pension. I'm 61 & hes on my…
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Hi there
I’m on lwcra but I have the unfortunate dealings with a UC Review not the LWCRA but the UCR agent has given a pause of the review and for me to have opportunity to get my carers bank statements of 4 months I have explained that due to the carer being unavailable and away I can’t obtain these documents the bank account is…
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Hi, my name is hev548!
hi . my council housing said i could stop paying them £70 a mth for my 3rd bedroom as my disabled daughter and has a carer stay to help 2:-3 days week . next thing the universal credit has take. £70 off my benefit to pay the housing with it . ..i’ve rang the uc and asked why and they just keep saying . because they’re…
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Managing direct payments
Hi So i have been approved for DP and had the financial assessment but the social worker at the council has said that they will now pass the referral onto people plus who will contact me about DP set up etc. As far as i have read online about them they will manage everything on my behalf is this correct? They have soo many…
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Hi, my name is Francisx! I am a middle age man with severe Osteoarthritis...
I am a middle age man with severe Osteoarthritis. I am also a carer for my mother with Alzheimer, epilepsy and now lung cáncer. I am increasingly struggling in my daily life, physically and mentally with my condition. Also this is affecting my ability to care for my mum, who needs 24/7 care. I am worried that I won't be…
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need help for my Visual impairment adult son
Hello I have a son age31 still living at home with visual impairment with possibility of autism/ADHD, I'm really looking for help for his mental wellbeing for him to begin living independently as I now have have my own health issues and he's getting to much for me, as i find him very challenging when he becomes angry and…
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Benefits
Hi I'm new to this site. I have advanced Parkinsons and due to go into hospital for a double hip replacement (left one to get done first as it is the more worse one atm) I get ADP and Esa (support group) benefits my husband works full time but has to help me shower, dress each morning and make me breakfast if I want it and…
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help
Hello to every again dose anyone know what happeing to people who need help with day life. I been told I can never again will that change under this govement.
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World Autism Acceptance Month – Introduction for Parents and Carers
Part Two - World Autism Acceptance Month - Practical Strategies for Parents and Carers Part Three - World Autism Awareness Month - Autism and Girls Part Four - World Autism Acceptance Month - Pathological Demand Avoidance (PDA) As we are right in the middle of World Autism Acceptance month, I thought we could make it this…
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Universal credit.
Hi I am a carer for my adult autistic son who I help to live independently. I'm in my seventies and find it difficult with computers. My son went over to Universal credit in January, I'm just getting used to it. On his journal yesterday it says because his rent has increased his transitional payment has gone down by the…
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Hi, my name is Shamu! My mother recently received her first Direct Payment for her PA...
HI my mother recently received her first Direct Payment for her PA, the original SW said it would be back dated to the 14th October that's when the OT assessed her and we signed the contract on the 14th November but the new key worker has said DP cannot be back dated and they have only paid from the 02.01.2025 - does…
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Hi, my name is Duncan33! I am Dad and sole carer for my 40 yo son who has special needs and learn...
I am Dad and sole carer for my 40 yo son who has special needs and learning difficulties, I am 79 and not in good health,, Fibromyalgia, CFS , osteoarthritis kidney failure etc. we are approaching the time for my son to go into Shared Living. He is terrified. He suffers from depression, getting very angry and out of…
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Flower power
I was feeling rather fed up this morning and dealing with health flared up yet again then I got a knock on the door a delivery of tiny plug plants that I completely forgot I ordered in early January on a special offer deal so it was a nice surprise today seeing these tiny little plants about an inch big and knowing that…
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Care charge
hey there everyone I was wondering if you could help me out I have a question about carers my mom has carers that come in 4 times a day and she has to pay for the whole hour even though they stay for 20mins this has resulted in me taking a 3grand debt in my name for her and now she owes 6 grand obviously she can’t pay this…
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Experiences with a personal assistant?
Hi everyone! I've been working with a development worker for some time and did a strengths and needs assessment a few months ago and we have kept talking about potentially getting a personal assistant, but I'm really unsure on it and I was looking for advice. My view is a little bit someone or muitple people of different…
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Housing Advice
Hi, I’m 23 years old with no children or partner and have mental health issues depression and anxiety as well as dyslexia and I’m awaiting an assessment for autism and adhd. I’m currently in temporary accommodation. I came to the council on May 22nd 2024 and explained to them why I was now homeless and why I left my family…
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Carers assessment, and applying for pip for myself
Hi, I am a carer for my disabled hubbie, who amongst a host of things is on dialysis, which is the major problem of the moment. In June I fell and broke my right shoulder, and my daughter had to come every day and help out for three weeks till I could get around without too much pain and just use my left arm. I found out…
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Hi my name is Tina
Came to ask questions about state pension. I posted that separately. I get my pension in nov. I'm a year and three months older than hubby. This is a whole new learning curve and I was very stressed about it, but now I've started its not so bad…migration was a dozy. But worked out three times as good as we had it before so…
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Hi, my name is Frankie17! Asked to stay over and support a friend, who is old and ill.
Hello everyone, just a quick question, I have been asked to stay over (Sleep over) a friend's who is old and ill. This is for general support, advice on eating/ and for any emergencies during the night, also taking him to appointments in his car. He receives a care package and would be willing to pay me out of it. I get…
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Hi, my name is dtchris! Help my mum with housework while she recovers
Hi I am looking for someone to help my mum with housework while she recovers from chemo/radiotherapy for lung cancer. She is 68 and lives in Yateley area. I need a DBS cleared helper. Where can I get someone like this? Thanks. Deb
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Help to find advocote solistor to help me write to obusman urgently got 7 days to hold things up to
I have complex needs. I self funded a care home in Wales (moved back to england) I need to compan about the service to ombudsman direct. But I need help. I am autisic under educated low iq. And wheelchair user and many health needs and comunication can go off topic according to social worker. I complaint to care home no…
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Needing a Carer with me for Housing Association appointments and hospital visit - First post!
Hi everyone, This is my first post and I have a problem that I think many people may share. I need someone to be with me when operatives come from my Housing Association to do disability works because I have been abused by them before (proven). I can have life threatening epileptic fits when I am stressed and I need…
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Direct Payments - for or against?
I will be attending an LA meeting soon, representing self-directed support using Direct Payments. Any suggestions as to what works, how well your LA administer it and are you encouraged to use it. For example this is on my LA website relating to Direct Payments:- "It’s important you read the terms and conditions that come…
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Carers elements uc
Can I ask if both UC claimants receive full pip ( in a couple joint claim) if one loses lcwra and other person cares so gets carers elements for them can they both claim carers elements as a couple of they care for each other
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Hi, my name is Daffodil94!
I’ve just discovered Scope and am looking forward to exchanging information and ideas with you all. I'm a 71 year old Mum, grandma and friend to disabled members of my family and community. I also have my lovely cat Nova who is 3.
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Living with my partner
Now me and partner are living together we are finding it very hard to get couples time with 2 carers in house. We are alone in bedroom at night but that when we can move the least. One of my carers used to put us in bed together then move one us after. She left and the others have refused. Any suggestions welcome
