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Flower power
I was feeling rather fed up this morning and dealing with health flared up yet again then I got a knock on the door a delivery of tiny plug plants that I completely forgot I ordered in early January on a special offer deal so it was a nice surprise today seeing these tiny little plants about an inch big and knowing that…
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Hi, my name is hev548!
hi . my council housing said i could stop paying them £70 a mth for my 3rd bedroom as my disabled daughter and has a carer stay to help 2:-3 days week . next thing the universal credit has take. £70 off my benefit to pay the housing with it . ..i’ve rang the uc and asked why and they just keep saying . because they’re…
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Care charge
hey there everyone I was wondering if you could help me out I have a question about carers my mom has carers that come in 4 times a day and she has to pay for the whole hour even though they stay for 20mins this has resulted in me taking a 3grand debt in my name for her and now she owes 6 grand obviously she can’t pay this…
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Managing direct payments
Hi So i have been approved for DP and had the financial assessment but the social worker at the council has said that they will now pass the referral onto people plus who will contact me about DP set up etc. As far as i have read online about them they will manage everything on my behalf is this correct? They have soo many…
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Experiences with a personal assistant?
Hi everyone! I've been working with a development worker for some time and did a strengths and needs assessment a few months ago and we have kept talking about potentially getting a personal assistant, but I'm really unsure on it and I was looking for advice. My view is a little bit someone or muitple people of different…
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Housing Advice
Hi, I’m 23 years old with no children or partner and have mental health issues depression and anxiety as well as dyslexia and I’m awaiting an assessment for autism and adhd. I’m currently in temporary accommodation. I came to the council on May 22nd 2024 and explained to them why I was now homeless and why I left my family…
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Carers assessment, and applying for pip for myself
Hi, I am a carer for my disabled hubbie, who amongst a host of things is on dialysis, which is the major problem of the moment. In June I fell and broke my right shoulder, and my daughter had to come every day and help out for three weeks till I could get around without too much pain and just use my left arm. I found out…
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Hi my name is Tina
Came to ask questions about state pension. I posted that separately. I get my pension in nov. I'm a year and three months older than hubby. This is a whole new learning curve and I was very stressed about it, but now I've started its not so bad…migration was a dozy. But worked out three times as good as we had it before so…
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Hi, my name is Frankie17! Asked to stay over and support a friend, who is old and ill.
Hello everyone, just a quick question, I have been asked to stay over (Sleep over) a friend's who is old and ill. This is for general support, advice on eating/ and for any emergencies during the night, also taking him to appointments in his car. He receives a care package and would be willing to pay me out of it. I get…
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Hi, my name is dtchris! Help my mum with housework while she recovers
Hi I am looking for someone to help my mum with housework while she recovers from chemo/radiotherapy for lung cancer. She is 68 and lives in Yateley area. I need a DBS cleared helper. Where can I get someone like this? Thanks. Deb
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Help to find advocote solistor to help me write to obusman urgently got 7 days to hold things up to
I have complex needs. I self funded a care home in Wales (moved back to england) I need to compan about the service to ombudsman direct. But I need help. I am autisic under educated low iq. And wheelchair user and many health needs and comunication can go off topic according to social worker. I complaint to care home no…
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Needing a Carer with me for Housing Association appointments and hospital visit - First post!
Hi everyone, This is my first post and I have a problem that I think many people may share. I need someone to be with me when operatives come from my Housing Association to do disability works because I have been abused by them before (proven). I can have life threatening epileptic fits when I am stressed and I need…
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Direct Payments - for or against?
I will be attending an LA meeting soon, representing self-directed support using Direct Payments. Any suggestions as to what works, how well your LA administer it and are you encouraged to use it. For example this is on my LA website relating to Direct Payments:- "It’s important you read the terms and conditions that come…
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Carers elements uc
Can I ask if both UC claimants receive full pip ( in a couple joint claim) if one loses lcwra and other person cares so gets carers elements for them can they both claim carers elements as a couple of they care for each other
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Hi, my name is Daffodil94!
I’ve just discovered Scope and am looking forward to exchanging information and ideas with you all. I'm a 71 year old Mum, grandma and friend to disabled members of my family and community. I also have my lovely cat Nova who is 3.
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Living with my partner
Now me and partner are living together we are finding it very hard to get couples time with 2 carers in house. We are alone in bedroom at night but that when we can move the least. One of my carers used to put us in bed together then move one us after. She left and the others have refused. Any suggestions welcome
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Court of Protection: Property and Affairs - Deputyship Application
Hello, My name is Daniel, in July 2023 my brother Sam (37 years old) was the victim of assault, resulting in a severe brain injury. We (myself, our mum, and Sam’s fiancée) are applying for a deputyship / to be deputies for Sam’s property and affairs. Sam doesn’t have much in terms of finances or assets, however, we are in…
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RAISING THE SEN-BETWEENERS
I’m Lisa Lloyd, (also known as ASD with a G&T across social media), co-founder of SEND Reform England and a passionate advocate for hidden disabilities. I’m writing to share news of my upcoming book, Raising the SEN-Betweeners, launching on 11th October which is an honest, unfiltered account of raising my two autistic…
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Hi, my name is Bhawna! Willing to help disabled people and volunteer
I am willing to help disabled people and volunteer. I am currently in [Location removed by moderator] Surrey, but I will relocate if necessary.
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Mental abuse and bullying the disabled in council homes
I'm reaching out to anyone else who has experienced mental abuse in a council home because this has been my experience as well. I'm on disability, have a strong passion for music production that dates back almost 20 years, have no music equipment, and my grandmother doesn't seem to care about what I do. She also seems to…
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Hi, my name is Lw79! Carers Premium, would the person lose their LCWRA entitlement?
Hi there, I'm needing to come out of work to become a carer, the person I will be caring for recieves PIP and also LCWRA. Iv learnt that it would be pointless claiming Carers Allowance as this is deducted pound for pound from U.C, so it would make sense just to apply for the Carers Premium. My question is, if I claim the…
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Buying a house as a wheelchair user
Hi, I’m wanting to move out of my parent’s house to get more independence. I’ve tried to get on the council waiting list for homes but I’m not eligible as I’ve only been living in the area for nearly a year. I now am thinking of just buying a place without council help, however this would involve my parents having to pay…
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Hi, my name is weefieryscot!
I have dementia as well as mobility concerns due to arthritis and bursitis. I'm a retired special needs teacher and passionate about inclusivity and access. I am an activist for dementia awareness and accessibility but also for anyone with additional needs. And injustice generally
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Living with partner and carers
Hi I've just moved in together with my partner. We both 24 hrs carers full time wheelchair user. It is a bit manic having 2 sets of carers in one house with 2 different routine and rules any advice
