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National Epilepsy Week 2026.
Shout out to all those living with epilepsy and the support network around them.
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Hi, my name is magsyar71!
Hello any help.appreciated. My husband us in Universal Credit LCFW since 2022 because of his health issues and has been receiving Pip since May 2024. It wasn't until I had to do a change of circumstances iprompt n March 2026 for UC where I updated that I was a carer that we now receive the carers element payment ongoing. I…
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Joint to Single Claim Carers Element
Hi everyone, Currently on a joint claim (Basic, LCWRA for me, Carers for partner) but I genuinely think my marriage is over. No housing element as house is mortgaged, no children. If I go to a single claim I believe my LCWRA is protected, but quite honestly I would rely on the £209 carers element to be able to afford…
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Carers Allowance - temp loss
Does my wife lose her carers allowance - if she is unable to care for me for 6 weeks due to undergoing an operation, in a weeks and half, to remove her womb due to cancer ? Bear in mind that she has cared for me for 22 years without a single days break and has been claiming CA for 14 of those years. She is planning on…
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Hi, my name is Traceyderby72! Care provider neglected friend
HI I'm trying to help with the server negligence of a care provider who has neglected a friend who is 63 years old She's not had a bed to sleep in for over 2 years She's not giving any help with moving to a bungalow with wet room and is unable to use the bath yet care services are claiming to be trying to help but haven't…
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Care act
Have any of you had any care - paid for by your local authority ? Was it simple to obtain or did you have to fight for it ? The care act says : 8.14 The local authority must not charge for certain types of care and support which must be arranged free. These are: • intermediate care, including reablement, which must be…
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Help around my 'home'
I am struggling a bit to manage household tasks (due to poor hand functioning and strength) and am unsure where to look for things that may help me. Things like cleaning, hoovering, taking out waste, changing bedding - that type of thing. I'm wondering whether there are tools/equipment that people find really useful for…
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Hi, my name is Alexander123! Daughter moving in as carer
I have a one bedroom flat which i own outright i am on disability and pip But I need overnight care so need another bedroom My daughter can be my carer she can come and go so not living with me she lives with her auntie I can't afford a 2 bedroom flat but she is willing to put money towards the new property and live in as…
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Feeling guilty as a carer when you’re exhausted – how do you reset?
I care for my parents alongside a full-time job and, most days, I just about manage. But every now and then I hit a wall and feel completely worn out. On those days I’m not as patient as I’d like to be with my dad, and afterwards I feel really guilty. I know I’m not the only one juggling work, caring and trying to have…
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Universal credit : Carers element
If you receive high rate care component of PIP for yourself so you receive limited capability for work also and you look after a disabled child who gets PIP, high rate care and mobility, you receive Carers allowance for them are you entitled to the care element for them also, or no because you get the limited capability…
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Carers Assesment
Hello Hoping For some advice . I’ve cared for my husband pretty much solely since he had his life changing RTA accident 19 months ago. He got lost in the system as I only found out two months ago and thought it was normal the way I had it deal with everything . Anyhow, adult social care team and the occupational therapy…
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Carer element of UC
My mum (71)claims her pension, AA (lower rate) and pension credits (as she claims AA) I am on UC, work 15 hours a week. My question is... if I claim the carers element of UC for her for being her carer (not carers allowance) does anyone know how this would affect her benefits? Which benefit would she potentially lose?…
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Direct Payments
I believe Ive got myself into a sticky situtation. We astarted getting these payments in the pandemic and tgeyve never been reviewd..I have been using them for cleaning products and care items instead of a respite carer for me...what can i do?
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Parents, carers & teachers - your thoughts on children's adaptive fashion?
If you are a parent, carer, teacher or work with children (aged 7-16) with a disability I would love to hear your experiences, insights and wants/needs with children's adaptive fashion. I am doing my University dissertation on the need for more adaptive fashion for children on the UK high street. I want to bring attention…
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Council Tax Carers Discount - MSE
Saw this on via the Money Saving Expert email and thought it was worth sharing. Martin Lewis: Don't trust councils' online info about the Council Tax Carers Discount – one in five English and Welsh councils get it wrong Click on link for full story..…
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Pension credit
Hello, i’m trying to get some advice please as i seem to be getting different answers, i’m currently in the process of claiming carers element in order to care for my mum full time, i’m currently on UC and put the claim in via my UC, when speaking to citizen advice they’ve told me claiming carer element wouldn’t completely…
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Nina’s law
Hi everyone Nina’s law is a campaign I’ve been running since October 2024 please sign and share, the goal is to ensure access to carers during any hospital trips for people with complex care needs all over the country
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Wife/Carer going into hospital - what to do ?
My wife/carer may have to go to hospital (her shoulders and hips are bad) - what would I do ? She is currently at her GP. Bearing in mind that I am virtually immobile and can't speak on the phone either - I am useless at virtually everything else that I try…. I also would be unable to visit her in hospital - because of my…
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Pip carers
Hi , my dad is my carer he claims uc and has transitional protection when he moved over from legacy , my pip is up for review if I lose it will he lose the transitional protection, he claims carers allowance and has a pension which uc deducts
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Home care and late-evening calls
Hello, Are there any home care agency users out there who have "late" evening visits — i.e. 10:30? I find it difficult to find a company that will come at a time I feel appropriate for my (middle) age. Anything after 9pm — 8pm with some — seems to be as if they're making a special allowance, and it's really restrictive.…
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✍️Carers Rights Day - Information for Parents & Carers of Disabled Children✍️
Today is Carers Rights Day and this years theme is "Know your rights, use your rights." For parents and carers of disabled children, knowing your rights and how to use them is so important to make sure that you and your child are getting as much support as possible. Your Right to an Assessment One of the most important…
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Wife given UC job focused interview - both care for children. Is this right?
Myself getting PIP advance rate for carrying and lower rate for mobility I have a seven year old son autistic nonverbal. He gets DLA higher rate for caring and mobility and I have four year-old son who get DLA middle rate for caring only and 1/5 year baby we claim with my wife as a joint clime . I am getting careers…
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Daughters carer and struggling to live - LCWRA
This discussion was created from comments split from: Advice for claimants RE: disabled carer’s TP errosion due to LCWRA addition .
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Husband my carer works full time but at a standstill
Hi everyone My first input I'm on pip, ESSA, nothing else I still have to pay for my medication I have a neurological condition FND and NEAD, plus other stuff plus lesions right of brain, anyway after a week of him calling 999 as had some hurendous none epidemic sezures, one point giving me cpr then week in hospital on a…
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Hi, my name is Ang1336! Can we claim disability premiums?
hi my husband claimed CA for me as my carer he stopped claiming on 22nd August up till he got his pip at standard rate,and has now applied for new style esa ,he’s been told that because he’s on pips he will go into the support group.I also get pips but enhanced on both, I’m also in the support group. Can claim disability…
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financial assessment for care costs - is it worth it?
Hi all I'm currently completing a financial assesment for my care needs (non residential, in Nottinghamshire county council). I haven't sent in my form yet as when I got to filling in almost the last page, they did a rough calculation of much I may have to pay towards my care - I think it was a cap, but it really shocked…
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Overwhelmed by employing PA
Hi there, I'm wondering if anyone has any advice for adjusting to having a PA? I've had a PA (via direct payments) since like the beginning of the year. We increased our contact hours gradually to give me time to adjust, but I'm having a really hard time with it. It's support that I've needed for a long time now, but I…
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Relationship of myself and my partner
Me and partner have 24hr care each and live together his through agency mine through direct payment. Apparently according to his agency I no say on his carers. As long he happy that it. Now owner says there issues bought up at his team meeting demanding to see me. If not
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Hi, my name is simon44!
Hi i work full time and also care for my wife and receive the carer element of universal credit and im considering giving up work to care for her full time and im worried how to go about it as we also receive universal credit as im on minimum wage, so if i stop work to look after her would our universal credit stop ,any…
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Support and cmht
IIf Somebody has impairments and disability. Can't use Internet phone or access outside world without support. They have no support network or family or friends and are totally reliant on cmht to support with call Internet to out side world Here's problem awaiting social services asessment have sufficient evidence.…
