How do we manage? Charged bedroom tax but have no spare rooms

nannydotty101
nannydotty101 Online Community Member Posts: 11 Listener
edited December 2025 in Benefits and income

disabled need heat all day help cleaning food gardeners taxis decorators careers places to go people to talk to and shopping all costing more than one average undisabled person how does the maths work seriously how does it work the little extra hardly pays a cleaner each week let alone gardeners are you changing pip are u changing uc I now have to pay bedroom tax for my 34 year old daughter never did on esa why now £100 per month and now I pay towards council tax I have not got a spare room my daughter lives in it and always has but gov say it’s spare coz she is 34 yet her 7 year old lives with me too don’t get your working out government you have killed me lost 3 stone in weight as can’t pay that and decent food

«1

Comments

  • nannydotty101
    nannydotty101 Online Community Member Posts: 11 Listener
  • Ross1975
    Ross1975 Online Community Member Posts: 435 Pioneering
    edited December 2025

    Maybe if you could get the 7 year old to have the spare room as her bedroom and your 34 year old daughter sleeps in the living room you may not have to pay the bedroom tax? I don't really know exactly how it works.

    Also citizens advice might be able to help and point you in the right direction if you explain your situation to them.

  • nannydotty101
    nannydotty101 Online Community Member Posts: 11 Listener

    I have tried that but they just will not listen to me but thank u for the advice

  • Rachel_Scope
    Rachel_Scope Posts: 2,548 Scope Online Community Coordinator

    It sounds like a tough situation @nannydotty101. Is your daughter able to help with cleaning and gardening?

    I'd recommend using a https://benefits-calculator.turn2us.org.uk/ as there might be some extra money you're entitled to. There are also food banks if you're struggling to buy food.

  • nannydotty101
    nannydotty101 Online Community Member Posts: 11 Listener

    I have fort this with UC and my council she herself is disabled and on UC and pip but I am getting nowhere thank you

  • Rachel_Scope
    Rachel_Scope Posts: 2,548 Scope Online Community Coordinator

    If you live in a 2 bedroom property with your daughter and grandson then I'm not sure why they are saying you have a spare room. There's some good information here that explains the rules and how to appeal - What is the Bedroom Tax?

    There's some information here that explains what is taken from the Housing Element of UC if another adult lives with you. There are exceptions to this depending on what benefits your daughter receives https://www.turn2us.org.uk/get-support/information-for-your-situation/universal-credit-uc-housing-costs-element/universal-credit-uc-what-if-i-have-another-adult-living-with-me#:~:text=housing%20costs%20element%3F-,Universal%20Credit%20(UC)%3A%20What%20if%20I%20have%20another%20adult,See%20full%20definition%20.

    Have you looked at all of your outgoings and checked that there aren't any payments going out that shouldn't be? It's easy to miss an old subscription payment for example. There's a Budget Planner which might help you see where your money is being spent and if there's anything you can change.

  • nannydotty101
    nannydotty101 Online Community Member Posts: 11 Listener

    it’s a 3 bedroom and it’s my husband me daughter and granddaughter

  • Rachel_Scope
    Rachel_Scope Posts: 2,548 Scope Online Community Coordinator

    I'm still not sure why they are charging you bedroom tax as your grandson is entitled to his own room. Does he stay anywhere else or just with you? If a child is classed as having a main home somewhere else that can affect it. There's more information here: https://www.ageuk.org.uk/information-advice/care/housing-options/renting-social-housing/the-bedroom-tax-how-it-works-and-who-it-affects/#:~:text=an%20adult%20couple,room%2C%20you%20may%20be%20affected.

  • nannydotty101
    nannydotty101 Online Community Member Posts: 11 Listener

    no he lives permanently with us

  • Rachel_Scope
    Rachel_Scope Posts: 2,548 Scope Online Community Coordinator

    I've changed the post title to include the bedroom tax issue and maybe someone who has more knowledge can offer their advice. Reading the information I've sent you it doesn't make sense that you're classed as having a spare room, but maybe there's something I'm missing. Sorry I can't be more help.

  • nannydotty101
    nannydotty101 Online Community Member Posts: 11 Listener

    thank you

  • Chris75_
    Chris75_ Online Community Member Posts: 4,261 Championing

    Have you considered getting less cleaning done? I pretty much gave up cleaning during the pandemic, and really only vacuum and wipe the toilet.

  • nannydotty101
    nannydotty101 Online Community Member Posts: 11 Listener

    I have a child living with me 2 disabled people and cleaning is essential

  • Chris75_
    Chris75_ Online Community Member Posts: 4,261 Championing

    You know best what your needs are, but if it was me, I would at least look at how much it is costing me, and whether I could cut out an hour here and there.

  • Anhedonia
    Anhedonia Online Community Member Posts: 56 Contributor

    If you are in a 3 bedroom house, with your daughter and your grandchild, you should not be being bedroom taxed. It sounds as though they have not put them properly on your claim. Is this for UC? If so, double check both your daughter and your grand child are listed on the 'other people who live with you' section. They have 100% made an error here.

  • nannydotty101
    nannydotty101 Online Community Member Posts: 11 Listener

    thank u I have put a note on my journal I am so confused with it all I’m waiting for a response I so hope they will sort this out thank you everyone

  • Rachel_Scope
    Rachel_Scope Posts: 2,548 Scope Online Community Coordinator

    Will you let us know the outcome please @nannydotty101? I'm very confused by it all and they definitely seem to have made a mistake.

  • nannydotty101
    nannydotty101 Online Community Member Posts: 11 Listener

    Yes I will let u know they have got back to me but are saying I don’t need regular help at night which I do so we are going back and forth at the moment

  • Adrian_Scope
    Adrian_Scope Posts: 11,925 Online Community Programme Lead

    Hello @nannydotty101. It sounds like they think you are asking for an additional room allowance for an overnight carer, rather than that the rooms are occupied.

    Have you reported your grandchild and your daughter as 'other people who live with you'? If they are not reported on your claim, you won't be awarded a bedroom allowance for them.

  • nannydotty101
    nannydotty101 Online Community Member Posts: 11 Listener

    I have told them since they changed me from ESA to UC that my daughter and granddaughter live with me and my husband as it’s a joint claim I had a response back yesterday and they said so you don’t need an overnight caregiver well I have already told them that day that I do and my husband gets up regularly to help me but he sleeps in the other room as I make so much noise he gets no sleep at all still waiting for a reply it’s driving me mad thank you though