No sign of Pio forms and they are due to be returned by the 16th January

brandy28655

It has been a nightmare trying to sort this out, and I am at my wits end. I have complex and multiple health issues. Both physically and mentally. (Mental is ADHD and suspected ASD, im waiting on that assessment) But, I applied for PIP last year, and was denied. I have now asked for the SAR and they screwed me over royally, but I was so upset I shut down and did not contest it. My health has seriously deteriorated over the last year and I can not functionally walk anymore. I have already been awarded LCWRA and have applied for a blue badge.

However, i called on the 11th of November and applied again. They asked if I wanted to do the online or paper, and I said online. I had no idea that you could only do it once. They did not tell me.

So, I spent the next few days trying to log on, and calling them trying to figure out why I couldnt. On the 24th of November, one of the people i spoke to figured out it was due to me applying online last time. They said they would send the paperwork out in the mail. I thought great, no problem.

I called back on the 5th of December as there were no signs of any pip forms. One person told me it could take 3 week, another said it could take 10 days, and one person said the papers hadnt been sent, and another said they had. (Can you see a pattern forming here?)

They said they would resend them again. On the 17th of December, I recived a letter saying, to please fill out the Pip 2 form and send it back by the 16th. (They had given me two extensions by this point, as i still had not recived any paperwork) The letter said, if i had not gotten the paperwork to call them. So i did, again.

Once again, they were not sure if it had been mailed or not, and once again said they would mail out another copy. and said, oh it may be in the Christmas mail backlog.

Well, last week I got two sets of Pip paperwork, but it was the Pip 1 forms. So, i filled one of them out and sent it back, even though it was the same thing they do on the phone.

Now, the issue is, its the 4th of Jan. the forms are due back by the 16th and I still havent recived them. I guess I will try to call them back again tomorrow. I tried last week when I got the Pip1 forms but sat on the phone for an hour and couldnt get through.

My question is, what do I do at this point? Just existing is hard for me these days, and this stress is doing my head in. On the plus side, I have been referred to the CFS clinic, the MSK clinic is trying to figure out what to do with me, and I have been diagnosed with severe vertigo on top og whatever mechanical and neurological issues are going on with my legs. I can only walk max 1500-2000 steps a day and that wipes me out for a min. of a day or so. I cant even bathe without having to rest for half an hour before attempting to get dressed, and i need help in the shower.

My balnce is gone, and i randomly have my legs collapse from under me. I am not safe walking at all anymore, and I can not walk unaided at all. In the house I furniture surf, and outside I use a stick, and often my husband or kids to stay by my side until we can get me to a mobility scooter. I can't walk around a shop anymore. Oh, and OT is coming to the house eventually to do a home assessment whenever they reach me in the queue.

Fun times!

But thank you for reading my novel, and any advice would be greatly appreciated.