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Help Colic
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Member Posts: 1,968
just wondered if anyone had any idea's Oliver will be 2 next month, and since he was about 4 months old has suffered from colic every night, have tried every remedy I can find, but nothing seems to work apart from a warm bath that calms him down, but i can't sit in the bath for 2 hours with him.
He has reflux drugs but thats made no difference, also takes movicol and domperidone.
Does anyone else have this problem, I wondered if it's more common with children with CP, aany advice would be appreciated.
Thanks Lisa
He has reflux drugs but thats made no difference, also takes movicol and domperidone.
Does anyone else have this problem, I wondered if it's more common with children with CP, aany advice would be appreciated.
Thanks Lisa
Replies
He has reflux drugs but thats made no difference, also takes movicol and domperidone.
Does anyone else have this problem, I wondered if it's more common with children with CP, aany advice would be appreciated.
Thanks Lisa
kate xxx
I know exactly what you mean about baths they do help a lot. It seems with Athena once she starts to be in pain she gets tence and stressed and this makes it worse
:At night I find rolling her onto her front and rubbing her back so that it rocks her if that makes sence, round and round and up and down and a bit of patting in between. I am proberly telling you things you already know.LoL
:Another trick good for winter is putting a hot watter bottle into bed if you need to take them out, Put it wraped up ready. It might help the settleing back to sleep timeframe.
:The main thing is not to get upset if you need to try all sorts and nothing seems to be working if you can stay calm he might pick up the vibe, this is so hard especially if you are tired I know. This may mean not doing cleaning and washing when he is napping in the day but grabbing sleep when you can. see if you can rope someone in to help you clean once a week so it does not get on top of you. And you can rest with one less worry
:Athena has a CD Loverly sleepy baby it soothes and distracts her from her tears.
:Keep night time activities as low key as pos I find Athena gets over stimulated very easily.
:Get him to drink plenty in the day I find Apple juce works for Athena its her favorate flushes their systems helps her phoo.
All the best and try not to stress
I also fed her myself in an up right position so her head was up facing towards by face not across so the milk went down her throat natrually and first it was strange but it really works and the tubby tub bath really helped to.lavender also helped her and mum too.
I also watched what I ate I stopped citrus fruits and sugar.
I hope I have helped a little your welcome to email me for more help or just a chat.
martha
I hope you are getting on better solving the colic.
If not some things you can try:
Slight elevation of the head end of the mattress from the waist, creating a slight ramp of no more than 10 degrees if he sleeps on his back.
A shallow bowl of water under the radiator to keep the air moist. Put a slice of lemon in to stop it stagnating and going mucky.
My daughter had colic, and those two things alone settled her almost immediately.
Also if he is nearly 2, could it be that it is now part of his routine...thereby he wakes, and you go to him and he has become accustomed to this. The same rites and rituals apply to CP kids as non CP - they get used to a rhythm and routine.
My answer to the ramp, to try it, was to roll up a beach towel ab put it under one end of the crib as a whole, so the whole crib was elevated only about 1.5"
Failing all that there are specialist products, like a ramped wedge that may be a possible solution.
Hope that's helped.
Good luck
A
He was 3 months and we gave him 5mls the effect was almost instant!
I'm having the same problem with my 4 month old and nothing seems to work.
Thanks
Kate
She said as a nation we try to soothe colic sufferers by rubbing backs but in other countries they don't do this. She explained it to me as ... if I feel like I have trapped wind what would I do - stand up or sit up straight!
Max is now 2yrs 5mths and still suffers from wind! I still make him sit on my lap and do this when he is uncomfortable and it still works.
One word of warning though...I got some funny looks when we were out and from family and friends initially...but hey it worked!
xxx
We've only just had a CP diagnosis - until he was 10 months old the doctors & paediatricians said he had colic but we just knew that there was more to it than that. Tom has 4 limb spastic cp - it's just amazing that the medical people missed the signs.
This is my 1st post on here - hello to all!
Maria x
Have you looked into reflux rather than wind/colic. A lot of CP babies have weak trunks and underlying weakness, despite stiffness (or intermittant stiffness) in their limbs. Not quite sure why reflux happens as its not confined to CP, but its when the muscle that keeps the stomach contents (including acid) is weak allowing acidy food/milk to come up into the lower section of the food pipe where it burns - hence the arching back - to get away from that severe indigestion feeling they have. Maybe CP weak muscles also apply to internal muscles?
Anyway, your GP of paed should manage this - there is baby gaviscon to neutralise the acid and ranitidine to reduce the amount of acid, along with physical methods such as keeping upright after feeds, raising head of cot etc.
Hope this helps but don't suffer in silence get back to the GP.
kate x
I think you might be right you know - I've heard that babes with CP can suffer with reflux. When he was supposed to be a 'colicky baby' we did try Infant Gaviscon, along with Colief, Yakult, Infacol and various other medications plus the anti-colic bottles and I gave up with all of them because nothing seemed to make any difference - then at Christmas we seemed to turn a corner and he no longer screamed all day every day and that is when we got first smiles, giggles etc whick was such a relief. But the issue hasn't gone away. Maybe it's time to revisit the Gaviscon and also speak again to the Paediatrician about it - they know we are having problems with his milk but I don't think they really know how bad things are for him. We are on the waiting list for an appointment with a Speech and Language therapist who specialises in eating and drinking too but Lord only knows when that will be. I guess I ruled out reflux because he doesn't posit his milk but then again, he does throw up quite spectacularly on a fairly regular basis, especially when we gets really upset about the discomfort he is in.
Thanks for the welcome and the advice & support! It's all still so new - I feel like I am in a nightmare I can't wake up from - my baby has brain damage and I feel as a mum I should be able to make things better but don't have it in my power to do so... He is, however, such a blessing - a really wonderful smily and friendly little boy - so bright and determined. I just wish he didn't have such a struggle ahead of him.
. I'll go get the Gaviscon tomorrow!
Maria x
kate x