40 and struggling

Billinge85

I've always said I have mild cereal palsy ..my left side. I work full time and have a lengthy commute. I'm struggling more and more physically and I have suffered spells of depression since childhood. I don't really know what point to make.

I just am noticing a real struggle now. I've always tried to push on through but I know I'd be better working part time. My fatigue feels such a struggle - but I have no partner and money is already tight.

What point am I getting at? I feel I'm aging quickly really and that I need to start looking after myself more instead of trying to power on.

Has anyone else noticed how hard it is to try and keep up and feeling older than they are?

GalDriver

Hi Billinge85, Sorry to read that you're struggling. I have progressive multiple sclerosis, so different to you, but my symptoms are much more of a struggle since I passed my mid-40s. I started feeling like an old lady, quite quickly. Long story short. I started taking care of myself. I always thought I was infallible and could handle burning the candle at both ends. Working long hours, short nights, etc. I'd always got away with it but not anymore. 20 years on and my MS is still a b*gger but I maintain it, and my life, a lot better. I have no secret, just basis stuff. Good nutrition, regular good quality sleep. Plus I use medical cannabis oil for pain and vitamins/supplements for general health. I've always loved a project but neglected my own physical and mental health so now I am my own project. 'Cos I'm worth it and so are you.

Going part-time sounds a good idea and be kind to yourself the way you'd care for someone you love. Good luck.

SaraC_Scope

Hi @Billinge85

Welcome to the community. I'm Sara one of the CP specialists in Scope's CP Network.

I understand all you are describing in your post. I have right sided hemiplegia and had no issues, apart from a slight limp in my 20's. I hit 45 and things went downhill rapidly. I started experiencing pain in my left hand and knee and after seeking medical advice (which wasn't easy) I was diagnosed with arthritis. I also experience challenging days with my mental health but have learnt to be kinder to myself. I work 4 days a week and I'm relatively active, but I also have days when I spend time watching television and no longer feel guilty about this.

There is a condition known as Post impairment syndrome, which impacts people with CP. Post impairment syndrome. I've included the link to an article written by my manager Richard Luke. I'm wondering if you have PIP or have considered applying, as this could help with finances.

You are welcome to join our CP Network. We host monthly meetings over Zoom where you can connect with like minded individuals and access information and resources. Here is the link for you to consider

Cerebral Palsy (CP) Network | Disability charity Scope UK

Tony60

Yeah I'm the same I am 64 now and as the years pass it's getting harder in every way imageable. Oh to be 25 again.

knight10

I know how you feel, I think you should have someone around to do some of the tougher task for you, there's no need to try and power on.