Hi, I am darkdestiny i just been diagnosised with EDS

Darkdestiny

Hi everyone,

Since August, I have been experiencing extreme pain in my hip, which eventually made it impossible for me to walk, work, or do daily activities. In February 2026, I was diagnosed with HEDS (Hypermobile Ehlers-Danlos Syndrome). Currently, I am seeing a chiropractor to help get my on my feet.

I’m really struggling with how much HEDS has changed my life. I joined this community to connect with others who truly understand what it’s like to live with this condition.

Thank you for having me here.

(she/Her

Rachel_Scope

Hi @Darkdestiny and welcome to the community! I'm sorry that you're struggling at the moment. I have chronic pain and went through a 'grieving' period as I couldn't do the things I used to do anymore. It takes time to adjust and understand what your limitations are. I'm sure there'll be other people here who can relate to you.

Do you have any mental health support?

Darkdestiny

@Rachel_Scope

I am trying to find mental health support.

I never thought about it as grieving but it definitely feel that way.

I got a wheelchair now so I can leave the house more to help with the depression.

Rachel_Scope

That's great that you can leave the house more. Have you spoken to your GP about mental health support? Here's a link to a list of ways you can find support https://www.nhs.uk/nhs-services/mental-health-services/