Hi, I am darkdestiny i just been diagnosised with EDS

Darkdestiny
Darkdestiny Community Member Posts: 3 Listener
in Talk about your impairment

Hi everyone,

Since August, I have been experiencing extreme pain in my hip, which eventually made it impossible for me to walk, work, or do daily activities. In February 2026, I was diagnosed with HEDS (Hypermobile Ehlers-Danlos Syndrome). Currently, I am seeing a chiropractor to help get my on my feet.

I’m really struggling with how much HEDS has changed my life. I joined this community to connect with others who truly understand what it’s like to live with this condition.

Thank you for having me here.

(she/Her

Comments

  • Rachel_Scope
    Rachel_Scope Posts: 3,454 Online Community Team

    Hi @Darkdestiny and welcome to the community! I'm sorry that you're struggling at the moment. I have chronic pain and went through a 'grieving' period as I couldn't do the things I used to do anymore. It takes time to adjust and understand what your limitations are. I'm sure there'll be other people here who can relate to you.

    Do you have any mental health support?

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