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Please help do i give my daughter BACLOFEN !!

My daughters CP effects all 4 limbs, she's nearly 4 years old. Her Specialist feels she will benefit from the oral drug baclofen. But after reading the long list of awful side effects i am so unsure and so worried for my daughter and how it will effect her.
Shes doing so well at nursery her speech and understanding has improved so well the passed few months also she is now toliet trained.
I am so worried that this drug will effect all this and most of all she wont be her true self.
Are there any parents who have any experiances with Baclofen ?
Thank you
Shes doing so well at nursery her speech and understanding has improved so well the passed few months also she is now toliet trained.
I am so worried that this drug will effect all this and most of all she wont be her true self.
Are there any parents who have any experiances with Baclofen ?
Thank you
Replies
Many thanks again your experience has helped me so much.
Mandy x
my daughter has 4 limb cerebral palsy, and is just over 3 1/2yrs. Her speech is also developing well, and her understanding is good. Four weeks ago she started a low dose of Baclofen 3 times a day, we had to increase it slightly, but it is still a very low dose for her age. she has had no side effects, and is so comfortable now. After two weeks on Baclofen she was able to sit up for 2-3 mins unsupported, and can now manage up to 20 mins, previously her hips and legs had been so tight she could not place her bottom flat on the floor.
I also agonised over whether to give it to her, and would still worry if we had to increase her dose considerably, but our experience so far is completely positive and just seeing her sat up on her own makes it completely worth it. Also her speech has improved because being comfortable makes it easier for her to concentrate.
Hope this helps, it is still such early days for us.
Hope this helps
But i would like to thank you all again.
Mandy x
my name is rachel i have a son who has quad cerabral palsy he is now 6 and has had baclofen since he was 18 months,he now has a inserted baclofen pump put in at nottingham,he has improved so much with it he has never had side effects from it,and for our son it was the best thing we ever done we can now change his pad and he is so much more relaxed,he is wheelchair dependant and it has made life so much better for him and us,it's your decission in the end.depends how severe she is,we try do alot of intensive physio for him to also help him.
if you want to ask anything else please ask.
rachel
Its day 5 and we can see its helping with her walking she can take steps with alot of our support.
But now her steps seem very free, no side effects as of yet.
I am so pleased so far,we do alot of physio (brainwave) program which is very intensive too.
there has been talk of this pump being fitted she has a 50/50 chance of having it fitted. We live not that far from nottingham. Thank you very much Rachel. Mandy
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