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need some help
bobsmum
Member Posts: 3
my niece has cp. she cant walk very well needs a wheelchair can walk with a frame. and not much use in one of her arms.
she is only 6 stone ( age 23) she wont admit shes got cp she thinks she is normal. she wont do any pyiso she wont move around hardley i dont know what to do to help her , her mother passed away last year. she always told her there was nothing wrong with her she wouldnt accept she had cp .
she is only 6 stone ( age 23) she wont admit shes got cp she thinks she is normal. she wont do any pyiso she wont move around hardley i dont know what to do to help her , her mother passed away last year. she always told her there was nothing wrong with her she wouldnt accept she had cp .
Replies
Sometimes people cope with their disabilities in different ways and it doesn't really matter what label you give it. She will be grieving for her mother at the moment and that's maybe all she can cope with at the moment never mind accepting that she has cerebral palsy. As regards physiotherapy, if you read lots of the posts on here you will see that for adults physio is rarely available.
All you can do at the moment is support her in her grief and be ready to support her in her disability when she asks.
If you would like to contact us at the Scope Response helpline we will be happy to talk through these issues with you, and see if we can help. Please call 0808 800 3333, or email [email protected]
Kind regards
Helpline Team
One thing you could do is to ask for a carer's assessment for Mum in Law. She is entitled to this as the principal carer and in this way outside agencies will become involved. The help available is very limited but better than nothing. As a seventy year old myself I could not envisage being my son's carer again and indeed it wouldn't be good for him as he would feel stifled. He is a couple of years older than your niece. Do you think perhaps your niece has felt stifled in the past and this is why she feels happy Mum has died?
If she wants to be treated as "normal" then that is what you must all do. If she didn't have a disability there is no way any of you would allow her to treat her nan badly so one of you must tear her off a strip. There is no reason why she shouldn't be upset, I know, I've been there. It is hard but it is the only way. It won't make her c.p. worse
As for her other aspirations; If she has capacity intellectually then there is no reason she can't aim for university. I know a couple of C.Pers who have been to university.
As for her other aspiration of driving. Assuming her eyesight is good enough there is no reason why not. There are all sorts of adaptations available for people with her type of disability. My son who cannot walk at all and has involuntary movements has driven several times off road and taking his driving test is one of his aspirations.
If you haven't already done so do contact scope as you need expert help in order to support your niece into independance.