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PEG J/ JPEG
My 6 month old recently had a PEG-J fitted at GOSH and I'm so worried we are not being given the best advice. Evie has had trouble putting on weight since birth, though she was full term she has struggled and now only weighs 5.8k and is being fed with infatrini peptisorb 2 wks ago we had a peg fitted with a jejunum extension, so her medicine goes into her tummy and food into her intestine. Those of u in the know please let me know if u know of a smaller sized tube as Evie has a size 15 tube for G tube and size 9 tube inside that one going into her jejunum is this the smallest possible for this kind of tube? Also Evie is far more twitchy, uncomfortable and her arms and legs move with far more distress when fed into her tummy, so when she was NJ fed she was so calm and happy, with this tube she's very uncomfortable and I worry we've done the wrong thing! Also the tube that goes into her jej is so big it now blocks her tummy from emptying and I have to drain the gastri juices that build up from her g tube and pass them down her J tube! Just horrible, I have to do this every 4 hours and I get around 20 mils! I just feel like its wrong and I don't feel I have had enough consultation or information about it! HELP xxx
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