If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
DEEP BRAIN Stimulation for Dystonia/Athetoid’s
Options
My_angel
Community member Posts: 18 Listener
Hello,
Has anyone went through DBS or know somebody who had it, any feedbacks please? we have been offered by Dr to help reduce athetoids /dystonia. Just hoping to hear anyones experience? Evidence shows quite a good results but the procedure is quite scare to me. thanks in advance.
Has anyone went through DBS or know somebody who had it, any feedbacks please? we have been offered by Dr to help reduce athetoids /dystonia. Just hoping to hear anyones experience? Evidence shows quite a good results but the procedure is quite scare to me. thanks in advance.
Comments
-
Deep Brain surgery is increasingly being offered to children and adults with dystonia or dystonic cerebral palsy because the results can be very effective. I understand why it seems scary. I know you posted this some time ago but if you are still considering the operation, I would ask your Consultant to talk it through with you in more detail and also ask if you can speak to any of his patients who have had DBS to ask them their experiences and results.
-
All sounds very interesting, I had never heard of Deep Brain Stimulation before. I will have to do some research on it. Thanks for your post. Please let us know what else you find out.
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.