Anyone with Dystonia ??
My_angel
Online Community Member Posts: 18 Listener
Hello everyone
I wonder if on this forum I can find parents with CP - Dystonia children?
My daughter is 3,5 has been recently diagnosed with Dystonia - and until 3 we thought its only erebral Palsy - so its kinda of new chapter in our life, anyone can advise how your children cope with it, any rehabilitation program etc... thank you
I wonder if on this forum I can find parents with CP - Dystonia children?
My daughter is 3,5 has been recently diagnosed with Dystonia - and until 3 we thought its only erebral Palsy - so its kinda of new chapter in our life, anyone can advise how your children cope with it, any rehabilitation program etc... thank you
0
Comments
-
Yes my son is 2 and a half has bad dystonia, health staff hardly see him and are rubbish took them ages to figure it out that he had dystonic cp, he has a new medicine called trihexphenidil helps reduce it a bit and it works!0
-
My son has trouble sleeping at night any tips?0
Categories
- All Categories
- 15.5K Start here and say hello!
- 7.3K Coffee lounge
- 91 Games den
- 1.7K People power
- 128 Announcements and information
- 24.2K Talk about life
- 5.8K Everyday life
- 430 Current affairs
- 2.4K Families and carers
- 874 Education and skills
- 1.9K Work
- 540 Money and bills
- 3.6K Housing and independent living
- 1.1K Transport and travel
- 628 Relationships
- 1.5K Mental health and wellbeing
- 2.5K Talk about your impairment
- 867 Rare, invisible, and undiagnosed conditions
- 924 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 40K Talk about your benefits
- 6K Employment and Support Allowance (ESA)
- 19.8K PIP, DLA, ADP and AA
- 8.5K Universal Credit (UC)
- 5.8K Benefits and income