Anyone with Dystonia ??

My_angel
Member Posts: 18 Listener
Hello everyone
I wonder if on this forum I can find parents with CP - Dystonia children?
My daughter is 3,5 has been recently diagnosed with Dystonia - and until 3 we thought its only erebral Palsy - so its kinda of new chapter in our life, anyone can advise how your children cope with it, any rehabilitation program etc... thank you
I wonder if on this forum I can find parents with CP - Dystonia children?
My daughter is 3,5 has been recently diagnosed with Dystonia - and until 3 we thought its only erebral Palsy - so its kinda of new chapter in our life, anyone can advise how your children cope with it, any rehabilitation program etc... thank you
Comments
-
Yes my son is 2 and a half has bad dystonia, health staff hardly see him and are rubbish took them ages to figure it out that he had dystonic cp, he has a new medicine called trihexphenidil helps reduce it a bit and it works!
-
My son has trouble sleeping at night any tips?
Brightness
Categories
- 54K All Categories
- 10.6K Start here and say hello!
- 5K Coffee lounge
- 4K Disability rights and campaigning
- 1.5K Research and opportunities
- 154 Community updates
- 12.1K Talk about your situation
- 1.8K Children, parents, and families
- 792 Work and employment
- 588 Education
- 1.2K Housing, transport, and independent living
- 1K Aids, adaptations, and equipment
- 291 Dating, sex, and relationships
- 265 Exercise and accessible facilities
- 21.6K Talk about money
- 2.1K Benefits and financial support
- 4.4K Employment and Support Allowance (ESA)
- 12.5K PIP, DLA, and AA
- 2.6K Universal Credit (UC)
- 4.1K Talk about your impairment
- 1.3K Cerebral palsy
- 687 Chronic pain and pain management
- 705 Rare, invisible, and undiagnosed conditions
- 760 Autism and neurodiversity
- 937 Mental health and wellbeing
- 311 Sensory impairments