Coping with Change and Challenges
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Hi Kerry, sorry to hear you and your husband are having such a difficult time. It is difficult to say how much of your husband's deteriorating condition would be linked to his cerebral palsy. Some people with cp will experience premature ageing symptoms often due to the additional wear and tear on their joins and muscles. You can find out more about Ageing and Cerebral Palsy on the Scope website http://www.scope.org.uk/Support/Parents-and-Carers/Landing/Cerebral-palsy/Ageing
However your husband also has other conditions so it is difficult to say which of his symptoms may be connected to the cp and which to arthritis, diabetes or even just general ageing. Certainly the cellulitis may be linked to something else such as the diabetes. Also if he is depressed and, I suspect, in a lot of pain, his behaviour will change and perhaps you are the only person he feels safe with to express his feelings and frustrations.
Have you talked to the Doctors and the Local Authority about your situation and concerns? It may be useful to talk to the hospital social worker and your husband's consultant to see what else can be done to help him or what support can be put in place to help both of you. If your husband is at home, then it may be useful to have a carer or community nurse come in to clean his ulcers and keep him comfortable.
It sounds like the hospital are taking care of your husband but obviously they have to concentrate on his physical condition before they can address his depression or anger but they also need to take into account the effect all this is having on you individually and as a couple and ensure you get the support you need. You need to look after yourself to help your husband.
Hope this helps a bit.
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