HEADRESTS

05ChocolateMuncher

Hi. My son has severe dystonic CP and very poor head control. We tried i2i headrest, but due to constant movements it wasn't robust enough and kept breaking so we went for a Chailey rollercoaster, but that keeps breaking too (we have 5 of them on various bits of equipment and they all keep breaking so its him not the headrest. Any one tried anything else. He is an i-gaze user so needs good head positioning.

Rocky

This is not really my area but if your son has not had a full OT assessment recently, it may be advisable to ask for this. He may find that improvements in his seating or even being in a standing frame part time (if that is possible) would help reduce the constant movement of his head. You may also find the following website and links useful - https://www.canchild.ca/en/canchildresources/enhancingadaptivefunction.asp

I's sure other parents who have had similar experiences will contribute to this discussion and maybe you may get some input from an Occupational Therapist.