If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Valuing the lives of our disabled children
How many people have also had this experience? I am repeatedly invited to write "Do Not Resuscitate" on my daughter's medical notes. I keep being told that asking the question is an NHS requirement. The thing is that, like her 2 sisters, she is in good health and has a normal life expectancy. Because her sisters don't have a disability, no one would dream of saying this about them. So why are they saying it about her, just because she has a disability? I feel very strongly that this is the ultimate in disability discrimination. We're not talking about someone with a limited life expectancy, or near the end of their life, we're talking about a healthy young person who happens to have cerebral palsy. I feel so strongly about it that I started this petition: https://www.change.org/p/health-secretary-stop-asking-families-of-disabled-young-people-to-discuss-do-not-resuscitate-directives