Hi, my name is niki29! — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Hi, my name is niki29!

my daughter has been high rate care since birth with numerous medical problems .she had a stoma formed at 7 hours old and had a colostomy bag for 3 years before reversing it.during this operation they failed to fit a catheter which resulted in her bladder going to sleep and perpherating her bowel which caused septacimia .she was rushed back to theatre where she had the stoma for another year and a superpubic catheter for 3 months until her bladder awoke.she now has to wear pull-ups due to being incontinent and has to have **** irrigation every other day to empty her bowels.we had a ot visit our home to see about adaptions as our bathroom and toilet are seperate and very small my daughter has to lie on the landing to have her irrigation which is difficult to hold the bag in the air to drain with one hand and try to hold the cone in her bottom with the other .the property was deemed unsuitable by the ot but council wont help move us despite many letters and reports from proffesionals

Comments

  • Debbie_Scope
    Debbie_Scope Member Posts: 944 Pioneering
    Hi Niki29,

    Welcome to the community and thanks for introducing yourself. You've been through a lot haven't you? I'm a bit baffled as to why the council won't help you move if your property has been deemed unsuitable by the OT?
    If you want to talk some more about this, I'd be happy to talk it through with you and see if I can offer any advice about this.

    Best wishes
    Debbie

Brightness

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.