Hi, my name is Sueg!

Sueg

Hi im sue . I have four beautiful children. My first child gem is 29 and married to Ryan. So i have a extra son now. Then i have adam. Hes in a relationship with Terrilea and they have my little geandaughter ella.so two more lol . Adam has type 1 diabetes. But lives a normal life. if there iis such a thing. Then i have josh . He's 18 and has aspergus . But he did his exams at school and college. He's now signing up for the sub marinas . Hes really quite and i can remember worrying lots about him. Having lots of problems. Then i have Tom. Hes 13 and has a rare condition called cystinosis . Hes tube fed and has loads of medicine and spends sometime in his wheelchair.has pins in his hips. Knees and ankles But is such a funny little guy. .i feel i have experience in so much stuff. Most days I'm the strong person who sorts everything out for everyone. But some days i just feel beaten up with life. But im a good actress and can usually bluff everyone that im OK. Sue xx

JenniferU

Hi @Sueg

Welcome! It's great to have you on our community. It sounds like you've really got your hands full - I'm not surprised it can be tough sometimes. I'm sure you'll find lots of other parents in similar situations you can chat to. Try posting in the parents and carers group or having a look around the conversations there.  
https://community.scope.org.uk/categories/carers-of-disabled-children-and-adults
Best wishes
Jen