Son diagnosed with ADHD and ASD

Catt
Catt Online Community Member Posts: 3 Listener
edited July 2016 in Talk about life
My 8 year old son was diagnosed nearly a year ago with both ASD and ADHD and that was that nothing about how to cope, how to explain to our older daughter, what we should or need to do or anything!! Should I be looking at SEN schools as a secondary choice, how long should he be on medication? 

Comments

  • JenniferU
    JenniferU Online Community Member Posts: 106 Empowering
    edited July 2016
    Hi @Catt, one of our lovely community champions @YoungCarerOverHere is a carer for her siblings, and has experience of ADHD. I'm sure she can offer some great advice about how you should support your daughter in particular. :)
  • YoungCarerOverHere
    YoungCarerOverHere Online Community Member Posts: 45 Connected
  • Catt
    Catt Online Community Member Posts: 3 Listener
  • Yiman60
    Yiman60 Online Community Member Posts: 93 Connected
    edited October 2016
    https://www.ipsea.org.uk/
    If you live in England I suggest you ring iipsea and they will advise what you are entitled to in schools. No one tells you anything.
    Has you son been checked forvthe Comorbid issues like Dyslexia , Dyspraxia , Dyscalculia. Another possibility is Irlen Syndrome..
    My sons due to blatant incompetence in CAMHS and Education System were knot diagnosed with Asbergers till lates teens. Youngest we now realise had ADHD when young now has ADD, Now trying to get a diagnosis of Pathological Demand Avoidance. PDA. If you have been given ADHD as part of the diagnosis it's worth checking out PDA site.

    http://www.pdasociety.org.uk/what-is-PDA

    My youngest tried Ritalin for a while and it made his worse. Look at the side effects of this drug, they are horrendous. I honestly can't understand why they prescribe while the contraindications one is anxiety.

    imwish my youngestbhad been prescribed meds for sleeping tho, it was and still is a nightmare, no pun intended. 
  • fisheralison2006
    fisheralison2006 Online Community Member Posts: 5 Listener
    hello, I'm new here and I'm trying to raise awareness of PDA which is a sub profile sitting alongside ASD.  

    Pathological Demand Avoidance (PDA) is now widely recognised as a distinct profile of autism. Individuals with a PDA profile will share similar difficulties to others on the autism spectrum in the following areas:

    • Social Communication Difficulties
    • ​Social Interaction Difficulties
    • Restrictive and Repetitive patterns of behaviour (including sensory seeking or sensory avoiding behaviour)
    More information can be found https://www.pdasociety.org.uk/what-is-PDA/about-pda

    we are currently campaigning for more awareness - please take 2 seconds to sign our petition to ensure children and adults with asd PDA receive the correct support it is key to their success in life.

    https://petition.parliament.uk/petitions/202680
  • JulieMcKay72
    JulieMcKay72 Online Community Member Posts: 4 Listener
    We have just been told in the last few days that my son has ADHD but, we are awaiting ASD pathway so, I got a pack to explain most of what I have already been doing to help him anyway, but nothing to help with social area where kids are allowed to tell him “to go away” and “we don’t like you, don’t come to the park” those are a few we have had. Breaks my heart people allow kids to be so cruel.  I don’t know anything else I can do but, worry medication is my worry as my husband doesn't want him on it at all.   Which will be reviewed in 6 months time 

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