Lower rates on PIP

goldtrees
goldtrees Online Community Member Posts: 13 Listener
edited October 2016 in PIP, DLA, ADP and AA
Good Afternoon

Thank you for all the hard work you have done so far sufferers of the same.

I have fibromyalgia, post traumatic stress disorder and severe depression with an unmanageable malignant high blood pressure for approximately 7 years.  I have had a mild stroke about 7 years ago as well.  I was on the DLA higher rate mobility and middle rate care for the past four years until I was asked to apply for PIP back June 2016.  I was to ill to make the original accessment.  I attended on 19 August and heard yesterday that I was awarded the lower rates for care and mobility.

Some of what the accessor reported I could not recall at all.  I was busy trying to cover my chest because of a nose bleed that occurs when I am too stressed. I had rested up the entire week before so that I could get there.  

The report claims that I looked well nourished and was capable to plan a journey.  Both my husband and noticed my memory failure and some of the dangerous things did occur when I tried to cook like catching the place on fire or leaving the food cooking and trying to take a quick nap that lead into hours.  I no longer cook at all because my hands cannot lift the heavy pots and pans and I just don't have an appetite anymore.   

Although I rested A week before the accessment I was still so tired.  This nose bleeds is normal when I push past the pain barrier to appear normal. My husband was with me but did not go into the assessment room. The assessment only took 20 minutes.  I waited over 30 minutes to be called in and I fell to sleep whilst waiting for the accessor.  Questions were fired at me and before I could complete them another one was there and the accessor was typing my answers. The report claimed I could manage and budget my finance and this is not true.  I do not recall being asked anything about budgets or finance at the accessment. I run up a debt of £39,000 that my husband had to take over with the debt management company. 

With regards to looking well nourished and well fed for months I was managing less and less until I slept most of the day without eating.  Normally when I am rushed to hospital it is usually as a result of malignant high blood pressure and or low potassium/anaemia.  Shortly after the assessment I was taken to the doctor by my husband because he noticed a drop in my memory and response to anything at all. Blood tests revealed that I had high gluclose but I should keep an eye on it and very low iron levels in my body.  He carried out a memory test and referred me to the memory clinic because he had some concerns.  I await that appointment. In the meantime I was prescribed iron tabs.  My husband gave up work to care for me over four ago.

I am going to ask for a reconsideration on the decision when I have the strength to do it.  

«1

Comments

  • shelliemarie
    shelliemarie Online Community Member Posts: 57 Listener
    goldtrees mine went exactly like yours did is there a way we can talk to each other part from on here please reply
  • goldtrees
    goldtrees Online Community Member Posts: 13 Listener
    Thank you goldtrees hope you are well!  I am not sure how we could without putting my details on here....
  • goldtrees
    goldtrees Online Community Member Posts: 13 Listener
    Lost my brain this morning.  Thank you shelliemarie.
  • shelliemarie
    shelliemarie Online Community Member Posts: 57 Listener
    can we talk goldtrees
  • goldtrees
    goldtrees Online Community Member Posts: 13 Listener
    Yes please. Not sure how to send my contact details. 
  • shelliemarie
    shelliemarie Online Community Member Posts: 57 Listener
    just looking and get back to u
  • shelliemarie
    shelliemarie Online Community Member Posts: 57 Listener
    go on to facebook page and where you see find friends tap in p.i.p benefit and press join thats what ive just done
  • goldtrees
    goldtrees Online Community Member Posts: 13 Listener
    Ur never toning to believe this, I don't have a face book account
  • shelliemarie
    shelliemarie Online Community Member Posts: 57 Listener
    ok how else are we going to do this and how are you doing this
  • goldtrees
    goldtrees Online Community Member Posts: 13 Listener
    I found this site through google.  So sorry. You are so kind.  I have an email address but don't want to put it on here
  • shelliemarie
    shelliemarie Online Community Member Posts: 57 Listener
    ok if you want do you speak to debbie voakes on here at all
  • goldtrees
    goldtrees Online Community Member Posts: 13 Listener
    I don't know anyone on here you are my first contact.  
  • shelliemarie
    shelliemarie Online Community Member Posts: 57 Listener
    debbie works for scope
  • goldtrees
    goldtrees Online Community Member Posts: 13 Listener
    Okay - should I try and contact her tomorrow?  Thanks for all your help Shelliemarie. F
  • shelliemarie
    shelliemarie Online Community Member Posts: 57 Listener
    yes what time because i can ring her and give her my email
  • goldtrees
    goldtrees Online Community Member Posts: 13 Listener
    I will try to call now
  • shelliemarie
    shelliemarie Online Community Member Posts: 57 Listener
    ok give debbie your email and i will do the same only if you want to talk apart from on here
  • goldtrees
    goldtrees Online Community Member Posts: 13 Listener
    Or maybe in ten minutes
  • shelliemarie
    shelliemarie Online Community Member Posts: 57 Listener
    how are you today hope your ok
  • goldtrees
    goldtrees Online Community Member Posts: 13 Listener
    Thank you for asking.  Very stiff today.   I called the Scope helpline and wait cuts off after waiting a while. 

    How owl are you?