If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

I have a blood disorder which changes week by week

Snigger Community member Posts: 4 Listener
Hi What happens if you have a condition that in not visual. I have a blood disorder which changes week by week. I suffer from extreme fatigue due to this condition .  I have nurse come  very week to check blood. my blood results are very erratic .  I asked why would I still suffer from extreme fatigue even if results are up and the answer was my body is constantly coping with constant change. The fatigue leaves my muscles very weak and find it hard to walk at times. There are days when I can't do anything but what if I can only my day of assessment . My condition also has took its toll and has led to anxiety and insomnia . I used to get transfusion every 2 to 3 weeks but recently my blood has not hit my trigger number which is below 30. However how do I explain that while my blood is up I am still so tired. I had my spleen removed to see if it would help my blood disorder but operation was unsuccessful and results fell.again. Recently I haven't needed transfusions but I still have the condition .  it is incurable..  Can you give me any advice please. Many thanks 


Complete our feedback form and tell us how we can make the community better.