Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Funding for treatment

Options
BeckyJ123
BeckyJ123 Community member Posts: 6 Listener
Hi I'm 22 with Cerebral Palsy (spastic diplega). When I was 18 I was dumped by the health care system and have had no help since. I have really struggled on my own without any support.

I went to my GP recently for advice and he didn't seem bother at all and was pretty useless. I live in Cornwall and no one seems to specialise in adults with CP or know how to help me.

I had heard of a centre for people with MS locally and thankfully they have experience with CP. They are really lovely and I have hope for the first time that I can revive help. Unfortunately it comes at a significant price. 

Does anyone know where I could maybe find funding for treatment? Is there anyone I could contact who might know?

Thanks

Comments

  • Zec Richardson
    Zec Richardson Community member Posts: 154 Pioneering
    Options
    Isn't a sad world when we have to ask for funding just to get the health care we deserve!
    I'm sorry that the system is letting you down like this, I'm afraid I have no words of wisdom but felt I wanted to reply. Is there not a CP charity that could advise?

    Zec
  • BeckyJ123
    BeckyJ123 Community member Posts: 6 Listener
    edited December 2016
    Options
    Thanks Zec Richardson 
    I work in the healthcare system and it is sad to see. I just really need help and if I have to pay for it then I will. Unfortunately it is expensive and there's only so much I can afford. I'll keep looking as there surely has to be something
  • OlliHannah
    OlliHannah Community member Posts: 30 Connected
    Options

    Hi Becky

    I'm really sorry to hear about your struggle to get the funding you need.

    I work as an Information & Advice Worker for Scope and although sadly we are not able to provide funding if you follow the link below it will take you to some information about finding & applying for grants which should be useful:

    http://www.scope.org.uk/support/disabled-people/money/grants-overview

    Best of luck with both the funding and the treatment

    Olli

  • bam
    bam Community member Posts: 326 Pioneering
    Options
    @BeckyJ123 I went to a Centre for people who have MS? What was the centre like?
  • BeckyJ123
    BeckyJ123 Community member Posts: 6 Listener
    Options
    bam said:
    @BeckyJ123 I went to a Centre for people who have MS? What was the centre like?
    They are great!! Although I don't have MS there are similarities. They offer physiotherapy, hyperbaric oxygen treatments and many other things. I would definitely recommend!!
Complete our feedback form and tell us how we can make the community better.

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.