Cerebral Palsy
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Funding for treatment

BeckyJ123BeckyJ123 Member Posts: 6 Listener
Hi I'm 22 with Cerebral Palsy (spastic diplega). When I was 18 I was dumped by the health care system and have had no help since. I have really struggled on my own without any support.

I went to my GP recently for advice and he didn't seem bother at all and was pretty useless. I live in Cornwall and no one seems to specialise in adults with CP or know how to help me.

I had heard of a centre for people with MS locally and thankfully they have experience with CP. They are really lovely and I have hope for the first time that I can revive help. Unfortunately it comes at a significant price. 

Does anyone know where I could maybe find funding for treatment? Is there anyone I could contact who might know?

Thanks

Replies

  • NoahNoah Member Posts: 430 Pioneering
    edited December 2016
    Hi @BeckyJ123

    Welcome to the community, I'm not sure where the best place to look is for funding.

    What sort of help does the MS centre offer?

    You might find it helpful to look at a discussion that a few of us have put together https://community.scope.org.uk/discussion/28690/things-that-you-have-found-helpful-for-managing-your-cp#latest

    Its very common for people to feel dumped by the health care system post 18. Please though don't give up on trying to find someone that does understand CP and what you need to help your situation, just because 1 GP was less than helpful, doesn't mean you won't be able to find and access the right help and support via the NHS as an adult.

    There is so much you can do that will help your situation, Feel free to ask any questions that you have, and we will do our best to help.

    Noah
  • Chris_AlumniChris_Alumni Scope alumni Posts: 695 Pioneering
    edited December 2016
    Hi @BeckyJ123, to add to what noah's said you might also like to give the free Scope helpline a call on 0808 800 3333 (9-5 mon-fri) as they may know what funding options are available.
Sign in or join us to comment.