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Apparently the term Cerebral Palsy is no longer used?

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Brightsky_101
Brightsky_101 Community member Posts: 9 Listener
Please can someone help me.
I have been told my son has Dipegia a type of Cerebral Palsy. Today we have just attended a meeting with everyone involved in his care. His paediatrician said to everyone that the term Cerebral Palsy is no longer used? We are confused?

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  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,665 Disability Gamechanger
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    That's quite confusing isnt it? As far as I know, the term is still used.  You can see it on the NHS website.

    @Jgeek @speedincaesar @Rainbow_wheelz16 what are your thoughts?

    Scope
    Senior online community officer
  • Richard_Scope
    Richard_Scope Posts: 3,638 Scope online community team
    edited March 2017
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    @Brightsky_101 that is new to me. I have heard that they dropped the term 'spastic' from spastic Diplegia. As far as I'm aware Cerebral Palsy is still a correct term.

    Scope
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  • Brightsky_101
    Brightsky_101 Community member Posts: 9 Listener
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    News to us also. I will continue to use the term Cerebral Palsy.
  • Brightsky_101
    Brightsky_101 Community member Posts: 9 Listener
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    Just to clarify the paediatrician said the correct term is child with difficulties, so I said so he doesn't have C.P then, to which she said he does but we don't use the term anymore?
  • Richard_Scope
    Richard_Scope Posts: 3,638 Scope online community team
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    @Brightsky_101 there is nothing wrong with still using it. To my mind it is the correct term.

    Scope
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  • Stayce
    Stayce Community member, CP Network Posts: 846 Pioneering
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    Hi @Brightsky_101

    Most interesting!

    The correct terminology is Cerebal palsy with .... (insert affected area). For example for me this would be  Cerebral Palsy with right Hemiplegia. For your son it would be from what you describe as Cerebral Palsy with Deplegia 



    This is most certainly the correct terminology from a neurological perspective. 

    I think the paediatrician is incorrect, unless the diagnosis of Deplegia for your son is thought to have been caused by an injury to the spinal cord 

    Hope this is helpful

    Best wishes
  • forgoodnesssake
    forgoodnesssake Community member Posts: 512 Pioneering
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    This would be, I guess, a generic paediatrician, some of whom I am afraid know very little about the different manifestations of CP!  Sounds like political correctness gone mad..."difficulties" tells you nothing - could mean anything at all.  Cerebral Palsy is a clear description/definition of a specific type of impairment (yes, medical rather than social model, but we are talking about health service staff!) and actually it is important to know if possible what type of CP and indeed that a person has CP because it helps everyone have at least an inkling in what other ways they might be affected!  My 18 year old son has athetoid CP with distonia and no medic has ever said that he has "difficulites" rather than CP!  the term is most certainly in active and accurate use!


  • Brightsky_101
    Brightsky_101 Community member Posts: 9 Listener
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    Thank you all, I'm just still so annoyed about it. It is political correctness gone mad.

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