Will I need another assessment if my impairment worsens and I need a wheelchair? — Scope | Disability forum
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Will I need another assessment if my impairment worsens and I need a wheelchair?

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lilydj
lilydj Community member Posts: 1 Listener
edited May 2017 in PIP, DLA, and AA
Hi, I'm new to this so please excuse me. I have spinal stenosis, that's bone spurs that grow from the vertebrae into the spinal column and causes severe pain 24/7. It doesn't matter what pain relief I take it barely takes the edge off it. Getting about can be a major chore and some days it takes quite a bit of pep talking to myself to get me motivated lol. I claim PIP at the lower rate at the moment but I may be having an operation later this year and I have been told by the neurosurgeon I have a 50% chance I may end up permanently in a wheelchair so I may have to claim the higher rate. I just wanted to confirm whether or not I'd have to go through an assessment again, which is more than likely, and if anyone had any advice on what to do next. I'll be seeing the neurosurgeon early next month to confirm whether or not I would like to go ahead with the surgery. I need to know more about it before I make a decision, any help or information would be gratefully received.
Many Thanks
Lilydj 
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  • Geoark
    Geoark Community member Posts: 1,463 Disability Gamechanger
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    Hello @lilydj and welcome to the forum.

    Short answer is you will probably need to be reassessed after recovering from the surgery, either because your condition has improved or as mentioned you end up in a wheelchair.

    I do not envy your choice and not sure if I feel comfortable offering advice on whether or not to take the operation. I assume the pain you are in is because the spurs are trapping the nerves, and one of the dangers in having the operation is some form of paralysis?

    Without doubt if the operation significantly reduces or removes the pain your quality of life will be far better, but this has to be balanced by what the likely results will be if things go wrong and how much you are prepared to risk for the improvement in your quality of life. Only you can make that decision, but it has to be based on a realistic understanding of the consequence if things do go wrong, along with the long term prognosis if you don't take the operation, ie will it likely worsen over time?

    Do you know the type of surgery being recommended by the neurosurgeon? Interspinous spacers are less invasive, other types of operations in spinal fusion or decompression are more traditional.

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  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,671 Disability Gamechanger
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    Hi @lilydj welcome to the community, I am sorry to hear about your health issues.
    Scope
    Senior online community officer
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