Ehlers Danlos Syndrome - type 3 enough is enough

tan
tan Online Community Member Posts: 5 Connected
edited October 2021 in Rare, invisible, and undiagnosed conditions
Dose anyone else with ehlers danlos sydrome feel so weak and tiers that it in possible to even listen to people and remember stuff!? 

Comments

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @tan we had a guest post about Ehlers Danlos Syndrome you might like to look at. 

    @timoglock do you have any advice?
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @tan how are you getting on?
  • timoglock
    timoglock Online Community Member Posts: 23 Contributor
    edited September 2017
    Hi @tan sorry not to have replied earlier, I haven’t been well which probably answers your question!    When we have problems with joints and tissues it can set up inflammation. Our bodies are trying to cope with all the increased pain, medical drugs also are used in acute pain or sometimes people use use nerve drugs.  This can all lead to chronic fatigue and ‘brain fog’ .  It does go in phases and pacing does help.   You are not alone.

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