Hi my name is Karon
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blueeyes74
Online Community Member Posts: 2 Listener
Hi there. I thought it was time I told you about what brings me here.
Well at the age of three I fell on ice playing with the other kids. I broke my knee and at the time I was treated as any other break. From that point on I spent the next 25 years falling over and every time I fell something would break or the pain was unexplained. Doctors said I was just clumsy and accident prone.
Then in 2002 I got a doctor to listen to me. After many tests and being told it is all in my head. I got diagnosed with Complex Regional Pain Syndrome.
At the time I was a single mum with 2 children and working full time as a nurse.
In 2012 my life changed after repeated falls at work I was told I could no longer work.
This disorder has started in my left leg and now covers both legs, my left arm, my lower back and chest.
I would love to still work but at the moment I can't afford an electronic wheelchair and nobody will accept how flexible I need the hours and area to be.
Well at the age of three I fell on ice playing with the other kids. I broke my knee and at the time I was treated as any other break. From that point on I spent the next 25 years falling over and every time I fell something would break or the pain was unexplained. Doctors said I was just clumsy and accident prone.
Then in 2002 I got a doctor to listen to me. After many tests and being told it is all in my head. I got diagnosed with Complex Regional Pain Syndrome.
At the time I was a single mum with 2 children and working full time as a nurse.
In 2012 my life changed after repeated falls at work I was told I could no longer work.
This disorder has started in my left leg and now covers both legs, my left arm, my lower back and chest.
I would love to still work but at the moment I can't afford an electronic wheelchair and nobody will accept how flexible I need the hours and area to be.
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Comments
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Hi Karon, Welcome to Scope's online community! It sounds like you've been on quite a journey. I have fibromyalgia, and it took a good few years to be finally diagnosed! We have quite a lot of pages at Scope that can give advice about work here: https://community.scope.org.uk/categories/benefits-and-finances and we also have a chat thread here: https://community.scope.org.uk/categories/disabled-people If you're just looking for some support, or to chat with people similar to you. Hope that helps, Becca0
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Hi @blueeyes74,
Welcome to Scope's online community! It's great to have you here.
As @BeccaShark123 mentions above, there's plenty of groups and discussions here on the community which you can get involved with, whether it be for advice or support, or just for a chat. Do check out the ones Becca recommends and have a look around.
If you have any questions, then please do get in touch!0
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