Advocate "Unable to attend" — Scope | Disability forum
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Advocate "Unable to attend"

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Barrylad1957
Barrylad1957 Community member Posts: 99 Courageous
Hi all, I don't know if anybody else has experienced this. I posted last week that I have been invited to attend a PIP assessment this coming Monday, at 08.45 hrs. I have been in contact over the last few months with a local group who provide advocates to attend WCA/PIP assessments with claimants (where I live, the rule of thumb from all advisers has been to NEVER attend an assessment unless accompanied by someone in the know). I was contacted by the group yesterday, and was informed that their advocate would not be able to accompany me, as "Its too early" - apparently, they dont start work until 9am! I'm a bit prone to 'seeing' bigger schemes in things than are actually there for real, and my head's been doing cartwheels since receiving the call. Has anyone else ever had this happen to them? Is this just a one-off, or is it something that others have experienced?

Comments

  • CockneyRebel
    CockneyRebel Community member Posts: 5,209 Disability Gamechanger
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    Not heard of this before. Sounds a bit inflexible of the advisors

    CR
    Be all you can be, make  every day count. Namaste
  • thespiceman
    thespiceman Community member Posts: 6,388 Disability Gamechanger
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    Hello just like to say you are not alone in this.  I have had in the past differculty with advocates I had appointed to help through certain problems I was experiencing with some medical professionals.  Had to cancel I afraid when they could not attend.  I know its annoying and frustrating.  I understand.  I agree that they should some flexibility here why not.
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  • Barrylad1957
    Barrylad1957 Community member Posts: 99 Courageous
    edited September 2017
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    @CockneyRebel Inflexible is exactly what I thought mate, especially when its a group who deal with mental health issues, and are totally up to speed with how difficult it is for me to attend such as this, the problems it can cause me, and the trouble I can end up in, etc.
    @thespiceman While I'm sorry to hear that its happened to you, its a relief to know that its not a case of it 'just being me', if you get my meaning? Since posting this this morning, I've heard from two unconnected people locally who have both recently had it happen to them, for reasons different than the assessments being too early in the day. I've spoken to someone else from a health group I attend who is trying to sort someone to accompany me, and she did tell me that the workload for advocates in my area is through the roof, and, while I'm not the ideal person to be allowed to run round free among the humans, I do appreciate that there are some who are a lot worse off than myself, who should take priority if the need arises. I'll just have to wait it out and see what happens.
    Thank you to both of you for responding (I've calmed down a bit and come down off the ceiling now)

  • thespiceman
    thespiceman Community member Posts: 6,388 Disability Gamechanger
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    Hello thanks for comments which I enjoy reading by the way.  I have found in the last couple of years that all these services are so overstretched and I have to recognise that.  I was startled the other day when I received an E-Mail the other week that the support worker had sent me.  It was sent late evening.  I know that it is not easy getting help and support especially mental health and advocate services.  I have said this computer I use is a lifeline.  Because my support goes like this initial contact then face to face then E-Mail support.  Then if my problems they can come back in to support me as recent ESA issues.  Plus other help such as appointments, form etc.  I am only too aware of so many of these services is now funding.  I am sure in the future SKYPE will be used to check how you are doing.  I know this was discussed at a conference I was attending on Mental Health. Wish you the best in your assessment
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
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  • Debbie_Alumni
    Debbie_Alumni Community member Posts: 932 Pioneering
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    Hi @Barrylad1957,

    Sorry to hear about your advocate not being able to attend with you.

    Is there anyone else who can go with you? 

    I think it would be reasonable to talk to the assessment provider to see if you can re-schedule the appointment. Is this something you'll do or will you try to find someone else to go with you?

    Best wishes
    Debbie
  • Barrylad1957
    Barrylad1957 Community member Posts: 99 Courageous
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    @Debbie_Scope
    Hiya Debbie, I spent the past few days getting it sorted. I panicked a bit ('cos I do), I called Involve NW/Connect us (who have been helping me with adjusting since having to finish work) and the person I deal with there is coming with me, and, she couldnt understand why I had sought advocacy elsewhere. I honestly didnt know they did attending assessments, etc., and to be honest I'm a lot more comfortable with her than I would have been with someone I only half know. I'm extremely grateful for her help, just as I am to yourself, and the others who have posted supporting comments. Scope, and this forum in particular, have been invaluable in helping me to realise that when something like this occurs, it is'nt "Just me" that things like this happen to, and it means so much to me to have that reassurance. Thank you again, everybody; I hope that I can use my experiences over the coming weeks to help others as I have been helped.
  • Debbie_Alumni
    Debbie_Alumni Community member Posts: 932 Pioneering
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    Hi @Barrylad1957,

    I'm so pleased to see that you've got support on the day now and with someone you already know. 

    I wish you all the very best for the assessment next week. I know you'll be anxious and for most people it's an exhausting day. If you're able to, make some notes after the assessment while it's fresh in your head just in case you need them.

    I look forward to the next update and thanks again for sharing with us.

    Have a good weekend
    Debbie :)
  • Barrylad1957
    Barrylad1957 Community member Posts: 99 Courageous
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    @Debbie_Scope
    Thanks, Debbie. Also, probably worth mentioning, that the group who are helping me on Monday are also taking steps (via contact with our MP) to hasten the date of my WCA; I've been in UC limbo since January, but apparently, I'm not alone - some people have been waiting over 18 months(!) already. So, fingers crossed  :) Have a lovely weekend yourself
    Baz
  • BlackfoxCadara
    BlackfoxCadara Community member Posts: 14 Connected
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    you can ask for phone call version and ask them to conference call your advocate in, you can also ask them to change the time past 12pm, as you need the morning for medications etc. 
    I'm pretty sure they are giving disable persons those EARLY appointments with aim to create stress deliberately. 
  • poppy123456
    poppy123456 Community member Posts: 54,122 Disability Gamechanger
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    you can ask for phone call version and ask them to conference call your advocate in, you can also ask them to change the time past 12pm, as you need the morning for medications etc. 
    I'm pretty sure they are giving disable persons those EARLY appointments with aim to create stress deliberately. 
    This is a very old thread from 2017. 
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.

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