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16 yr old has severe quadriplegic cerebral palsy - behaviour help and activities?

Just like to say hi to everyone my name is Bev and my husband is called Steve we are in our early 50's and we are full time carers for my son who is 16 yrs old, who has severe quadriplegic cerebral palsy with athetoid involuntary movement's, very little communication yet seems to understand to a point.
Obviously wheelchair bound ......and so on the biggest problem for us is his behaviour can be quite challenging and frustrating and not knowing where to turn and what activities if any to try and give him some quality of life and to take his mind off his frustrations. We live in Stockport and resources seem to be getting less and less.
Obviously wheelchair bound ......and so on the biggest problem for us is his behaviour can be quite challenging and frustrating and not knowing where to turn and what activities if any to try and give him some quality of life and to take his mind off his frustrations. We live in Stockport and resources seem to be getting less and less.
Replies
A very very big welcome to you to our website and online community
You have come to the right place for help and support.
I have attached some info for you below but if you require some more please let me know ???
https://www.scope.org.uk/support/families/diagnosis/cerebral-palsy
Stockport CP Society are very good and might be able to give you some advice.
They run cycling sessions at Woodbank Park 1-3pm on a Saturday, with special bikes for wheelchair users and a cafe. This is for kids and adults and there are lots of young lads there.
Jump Space, the trampolining place near the bus station is also good, they have hoists and the staff are all rebound therapy trained. There are drop in sessions at half term
Lots of other info here https://stockport.fsd.org.uk/kb5/stockport/fsd/localoffer.page
xxx
My son has his device from ACE in Oldham, and they definitely know quite a lot about that communication aid and different software so if you have not had any dealings with them before (they are the regional specialist AAC centre) you should ask to be referred, or contact them yourself, https://acecentre.org.uk/ and at the least they will be able to point you at some training. Apart from anything else the company Tobii Dynavox will come out and do some training for you (free) They did for us and they even came to our house. Your story really concerns me and unfortunately it is one we hear all too often. It is just such a pity that Scope now do virtually nothing about communication ...they have in the past run one or two very good campaigns about AAC, but not any more... Jenny
We are now in the process of looking further into this as I think they are now getting fed up of us getting on at them. It's just taking a while as all these things normally do and there is a new salt lady started at my sons school who is also more clued up about these machines a.nd training. Thanks everyone.