Hi, my name is ssarnold!
ssarnold
Online Community Member Posts: 6 Listener
Hi I've just joined the scope community
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Hi @ssarnold
Welcome to the community! We'd love to get to know you better.
Feel free to check out our recent discussions or find a group which is of interest.
See you around!1 -
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Hi all, thank you for welcoming me, still having a look around the site, A little about myself, I'm 49, Have had two episodes of brainstem palsies which to date still no diagnosis that started in 2012, which caused major complications, arrested, coma, kidney failure twice, two gastrointestinal feeding tubes to date, three months in intensive care, 6 month in patient, another 3 month stay due to relapse, lost count how many mri brain scans, many other tests and mri scans, now have fibromyalgia and under third specialist for another neurological illness, being investigated for possible myositis? Due to chronically raised ck for last 18months now. Muscle weakness, aching muscles, also have osteoarthritis in hands and feet and currently waiting for appeal date for pip because I've had motability refused and had my much needed car taken.. so now I'm house bound and can't get out. So feeling a bit fed up at moment, so looking for people to chat and befriend.. Sara.0
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Hello Sara and welcome
Thanks for sharing , so sorry you are going though this.
How long have you been waiting for your appeal date ?
Have you rung the tribunal clerk ? They may be able to tell you the waiting time in your area. With so many people being forced to go to appeal the waiting time is getting longer.
Please if there is any help you need, let us know and we will try and help
CR
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Thank you cr, I'm on a six month waiting list at the moment.. I have already rang them twice to chase things up. Sara.0
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Wow !
How long is your current award for ?
CR
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I've got care for another three years..no mobility.. I was on enhanced mobility until March this year!0
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The more I hear about these crazy decisions the more I don't understand how they can be honestly made. Then to make it worse,if thats possible, they take so long get to the right decision which must cost an absolute fortune. I cannot see how the Gov is saving money
CR
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I totally agree with you.. it must be costing a fortune and a massive back log of paperwork!0
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How did they think they were going to manage ?
Not only do they have new claims to process and existing time limited awards to reveiw, they have dragged back into the system people that they have already assessed as having life long debilitating conditions. Currently, it is thought that they are only about half way through the change over and already many people are being reveiwed again. Maybe fiscal aliens have taken over the government
CR
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Lol.. you would think so !!!!
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