Hi, my name is ssarnold! — Scope | Disability forum
Find out how to let us know if you're concerned about another member's safety.

Hi, my name is ssarnold!

Hi I've just joined the scope community

Comments

  • Alex
    Alex Scope Posts: 1,305 Pioneering
    Hi @ssarnold

    Welcome to the community! We'd love to get to know you better.

    Feel free to check out our recent discussions or find a group which is of interest.

    See you around!
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @ssarnold

    Welcome to our online community + website !!!!!!!

    Please Please dive in & let us know if there is any problems ????????

    Many thanks.

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,676 Disability Gamechanger
    Hi @ssarnold welcome to the community :)
    Scope
    Senior online community officer
  • ssarnold
    ssarnold Member Posts: 6 Listener
    Hi all, thank you for welcoming me, still having a look around the site, A little about myself, I'm 49, Have had two episodes of brainstem palsies which to date still no diagnosis that started in 2012, which caused major complications, arrested, coma, kidney failure twice, two gastrointestinal feeding tubes to date, three months in intensive care, 6 month in patient, another 3 month stay due to relapse, lost count how many  mri brain scans, many other tests and mri scans, now have fibromyalgia and under third specialist for another neurological illness, being investigated for possible myositis?  Due to chronically raised ck for last 18months now. Muscle weakness, aching muscles, also have osteoarthritis in hands and feet and currently waiting for appeal date for pip because I've had motability refused and had my much needed car taken.. so now I'm house bound and can't get out.  So feeling a bit fed up at moment, so looking for people to chat and befriend.. Sara.  
  • CockneyRebel
    CockneyRebel Member Posts: 5,216 Disability Gamechanger
    Hello Sara and welcome

    Thanks for sharing , so sorry you are going though this.
    How long have you been waiting for your appeal date ?
    Have you rung the tribunal clerk ? They may be able to tell you the waiting time in your area. With so many people being forced to go to appeal the waiting time is getting longer.
    Please if there is any help you need, let us know and we will try and help

    CR

    Be all you can be, make  every day count. Namaste
  • ssarnold
    ssarnold Member Posts: 6 Listener
    Thank you cr, I'm on a six month waiting list at the moment.. I have already rang them twice to chase things up. Sara. 
  • CockneyRebel
    CockneyRebel Member Posts: 5,216 Disability Gamechanger
    Wow !
    How long is your current award for ?

    CR
    Be all you can be, make  every day count. Namaste
  • ssarnold
    ssarnold Member Posts: 6 Listener
    I've got care for another three years..no mobility.. I was on enhanced mobility until March this year! 
  • CockneyRebel
    CockneyRebel Member Posts: 5,216 Disability Gamechanger
    The more I hear about these crazy decisions the more I don't understand how they can be honestly made. Then to make it worse,if thats possible, they take so long get to the right decision which must cost an absolute fortune. I cannot see how the Gov is saving money

    CR
    Be all you can be, make  every day count. Namaste
  • ssarnold
    ssarnold Member Posts: 6 Listener
    I totally agree with you.. it must be costing a fortune and a massive back log of paperwork! 
  • CockneyRebel
    CockneyRebel Member Posts: 5,216 Disability Gamechanger
    How did they think they were going to manage ?
    Not only do they have new claims to process and existing time limited awards to reveiw, they have dragged back into the system people that they have already assessed as having  life long debilitating conditions. Currently, it is thought that they are only about half way through the change over and already many people are being reveiwed again. Maybe fiscal aliens have taken over the government

    CR
    Be all you can be, make  every day count. Namaste
  • ssarnold
    ssarnold Member Posts: 6 Listener
    Lol.. you would think so !!!! 
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @ssarnold

    Yes the whole thing is bonkers, this is supposed too make things eaiser all round !!!!!!!!

    "These people are making a fortune at are expence"


Brightness

Complete our feedback form and tell us how we can make the community better.