disability living with chronic pain at times my pain is invisable

Sparkle
Sparkle Online Community Member Posts: 4 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
as above well meaning friends say oh you look well .are you getting better. have a gin/tonic. it goes on no one knows how much pain I'm in at my age I shouldn't cry. 

Comments

  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Hi @Sparkle, I also have invisible conditions and know this situation well: often these comments are made with good intentions, but they can just as easily have the opposite effect.

    I'm so sorry that you're in pain, are you receiving any specialist support for this? You might also find it comforting to look through our Dealing With Chronic Pain category, to find others in similar situations. I really hope today is as comfortable for you as possible. 
  • Sparkle
    Sparkle Online Community Member Posts: 4 Listener
    hi pippa iv had spinal surgery L4 L5 fursion artritis in back shoulders hands fingers sit bone radiahtes pain all around me legs are swollen.it goes on but at the minute my dr trying out meds for me alterative to a dose he doesn't like me taking . but it helps were in that phase ill be seeing my dr soon
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Hi @Sparkle,

    For what it's worth, I hope that you and your doctor can find something that works for you and relieves some of your discomfort. Feel free to talk about your experiences at any time, and do let us know if there's anything specific we can assist you with!

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