Fibromyalgia — Scope | Disability forum
Find out how to let us know if you're concerned about another member's safety.


hi to all can anyone help me out with any information about fibromyalgia that I think I have thank you and happy new year to all 


  • CockneyRebel
    CockneyRebel Member Posts: 5,216 Disability Gamechanger
    Hi dantheman and welcome

    Fibro can be hard to get a diagnosis but we have many members that to have the condition

    here is a link to the NHS site

    I hope that helpd, please come back with any questions


    Be all you can be, make  every day count. Namaste
  • Ritzy
    Ritzy Member Posts: 36 Courageous
    Hi dantheman
    I am new to the group and have Fibro., it has been a long road to get here but there is light at the end of the tunnel.  Talk to people like me who have the condition, it can be a lonely road to go down, but I have good friends who I can talk to, not all the time but when I'm having a bad day I can contact and cry if I want to.  I have just been told that I am going to be referred to pain management to help me cope with the condition, so ask you G.p if you can be referred to an organisation that can help you, often listening and talking helps.
  • Henry
    Henry Member Posts: 66 Courageous
    Joined  the club.  Th he syndrome is terrible.   Full  body pain muscles.   Headaches. feet. Neck. Shoulder.etc.
    Throw  tabs   at u   and thats it.
    Preigram. Amitriptyline.  Co.. cod. Disapal Etc
    Get on with it. That's  it. 


  • Misscleo
    Misscleo Member Posts: 647 Pioneering
    How right you are mophine and codine
  • Topkitten
    Topkitten Member Posts: 1,285 Pioneering
    With GP's it's always about tablets. They don't know how to fix stuff really.

    "I'm on the wrong side of heaven and the righteous side of hell" - from Wrong side of heaven by Five Finger Death Punch.
  • Henry
    Henry Member Posts: 66 Courageous
    It  has me  hammered.  Fibromyalgia.  Medical discharge.  Deemed at 100%
    Flare ups.  Medication  does help .
    However. It knocks me off my feet. Bed is the only answer.
    This  has also  left me with anxiety & depression. Almost 20years from a professional  person to this. Unable to do anything.  Even thro I have a Masters degree.
    PJLUFC Member Posts: 22 Listener
    Hi just joined the group myself and glad to be able to chat about our illness ,The worse thing about it I find is it,s an invisible illness and talking to a doctor or anyone about it you get the feeling that they are not listening or don,t understand or questioning and doubting you inside there head .
    I have suffered for years and knew I was not right ,Back and forth to the doctors at one point he said to me well what do you want me to do then .He even said to me at a further appointment that there is no way I would be sent to a rheumatologist from his surgery .
    I went to see the other doctor at the surgery where he was more understanding and sent me to get tests to chronic fatigue specialists then onto a rheumatologist where i was diagnosed with Fibromyalgia ,Osteoarthritis .
    It was like a weight had been lifted from my shoulders ,I left his surgery and left some harsh feedback for all to see but with treatment it is just bearable now and like most have said above it can go from one day a month feeling back to normal to feeling totally wiped out constant pain with all the symptoms thrown in at various stages or full on for weeks .
  • Misscleo
    Misscleo Member Posts: 647 Pioneering
    Arthritis and fibromyalgia go and in hand both just floor me iv had arthritis 60 years and fibromyalgia since 1983
    PJLUFC Member Posts: 22 Listener
    I had never even heard of Fibromyalgia before and I am really surprised at how long people have had it and been diagnosed with it ,A very long time that Misscleo since 83 .
  • Henry
    Henry Member Posts: 66 Courageous
    Read  up on it to get  an insight into this chronic fatigue and pain syndrome.   I  was discharged from the military after 30 years service. I have it now 20 years.


Complete our feedback form and tell us how we can make the community better.