If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Unseen disabilities and self catheterisation

Jasina
Member Posts: 2 Listener
Hi, my name is Jasina! I'm interested in groups/support which are concerned with unseen disabilities, especially self catheterisation
Comments
-
As an individual I stood alone.
As a member of a group I did things.
As part of a community I helped to create change! -
Hi @Jasina, welcome to the community!
I have moved your post over to our Invisible impairments group as it seems to fit what you're looking for.
I hope this helps, let me know if you have any questions! -
My daughter been self cathertising since she was 15 and apart from family she has had no support from anywhere x
-
I have been self catheterising since 1996. i sometimes feel that I "smell of urine" despite my friends and family telling me otherwise, and this can impact on me so much that I often don't want to go out. I'm sure I'm not the only person who feels this way, so just to let others know, you are not on your own. I think that, because we are so worried about this happening, we become preoccupied with it and smell things when there is no smell there.
I also think that having a forum where we can discuss various issues with people who know what it's like to self catheterise, is going to be really useful.
Brightness
Categories
- 55.3K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 160 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 838 Work and employment
- 600 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 302 Dating, sex, and relationships
- 269 Exercise and accessible facilities
- 22.3K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.8K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 705 Chronic pain and pain management
- 718 Rare, invisible, and undiagnosed conditions
- 774 Autism and neurodiversity
- 952 Mental health and wellbeing
- 314 Sensory impairments
Complete our feedback form and tell us how we can make the community better.