Unseen disabilities and self catheterisation — Scope | Disability forum
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Unseen disabilities and self catheterisation

Jasina
Jasina Member Posts: 2 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
Hi, my name is Jasina! I'm interested in groups/support which are concerned with unseen disabilities, especially self catheterisation 
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  • Geoark
    Geoark Member, Scope Volunteer Posts: 1,388 Disability Gamechanger
    Hello @Jasina and welcome to the community.

    Hopefully someone will be able to help with your enquiry

    As an individual I stood alone.
    As a member of a group I did things.
    As part of a community I helped to create change!

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  • Lasian_Alumni
    Lasian_Alumni Member Posts: 659 Pioneering
    Hi @Jasina, welcome to the community!

    I have moved your post over to our Invisible impairments group as it seems to fit what you're looking for.
    I hope this helps, let me know if you have any questions!
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  • wendyh
    wendyh Member Posts: 3 Connected
    My daughter been self cathertising since she was 15 and apart from family she has had no support from anywhere x
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  • Jasina
    Jasina Member Posts: 2 Listener
    I have been self catheterising since 1996. i sometimes feel that I "smell of urine" despite my friends and family telling me otherwise, and this can impact on me so much that I often don't want to go out. I'm sure I'm not the only person who feels this way, so just to let others know, you are not on your own. I think that, because we are so worried about this happening, we become preoccupied with it and smell things when there is no smell there.
    I also think that having a forum where we can discuss various issues with people who know what it's like to self catheterise, is going to be really useful.
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