Unseen disabilities and self catheterisation

Jasina

Hi, my name is Jasina! I'm interested in groups/support which are concerned with unseen disabilities, especially self catheterisation 

Geoark

Hello @Jasina and welcome to the community.

Hopefully someone will be able to help with your enquiry

Lasian_Alumni

Hi @Jasina, welcome to the community!

I have moved your post over to our Invisible impairments group as it seems to fit what you're looking for.
I hope this helps, let me know if you have any questions!

wendyh

My daughter been self cathertising since she was 15 and apart from family she has had no support from anywhere x

Jasina

I have been self catheterising since 1996. i sometimes feel that I "smell of urine" despite my friends and family telling me otherwise, and this can impact on me so much that I often don't want to go out. I'm sure I'm not the only person who feels this way, so just to let others know, you are not on your own. I think that, because we are so worried about this happening, we become preoccupied with it and smell things when there is no smell there.
I also think that having a forum where we can discuss various issues with people who know what it's like to self catheterise, is going to be really useful.