Replies

• Geoark Community champion, Scope Volunteer Posts: 1,365 Disability Gamechanger

  January 2018

  Hello @Jasina and welcome to the community.
  
  Hopefully someone will be able to help with your enquiry

  As an individual I stood alone.
  As a member of a group I did things.
  As part of a community I helped to create change!

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• Lasian_Scope Member Posts: 660 Pioneering

  January 2018

  Hi @Jasina, welcome to the community!
  
  I have moved your post over to our Invisible impairments group as it seems to fit what you're looking for.
  I hope this helps, let me know if you have any questions!

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• wendyh Member Posts: 3 Listener

  January 2018

  My daughter been self cathertising since she was 15 and apart from family she has had no support from anywhere x

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• Jasina Member Posts: 2 Listener

  January 2018

  I have been self catheterising since 1996. i sometimes feel that I "smell of urine" despite my friends and family telling me otherwise, and this can impact on me so much that I often don't want to go out. I'm sure I'm not the only person who feels this way, so just to let others know, you are not on your own. I think that, because we are so worried about this happening, we become preoccupied with it and smell things when there is no smell there.
  I also think that having a forum where we can discuss various issues with people who know what it's like to self catheterise, is going to be really useful.

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