Hi, my name is elizabethr!
elizabethr
Community member Posts: 5 Connected
My story is a long one so I'll leave that for now. I am disabled with long term chronic invisible health conditions. I also care for.my husband who is also disabled with chronic invisible health conditions. I used to work full time (stressful job and travelling) and my hobbies were very active (amateur stage, swimming, walking, skating) non of which i can do now. I struggle with life a lot if the time but i do have quite a positive attitude which helps. I have ME/CFS, fibromyalgia, crohns my husband has complex regional pain syndrome which has now been categorised as an auto immune disease . He has other symptoms besides the CRPS. He's just going through a review of his ESA (support group) and going form DLA PIP. This is making our lives quite stressful as you can imagine. Signing off for now as I'm quite weary .
0
Comments
-
Hi @elizabethr and welcome to the community! Great to have you here.
So sorry to hear about your circumstances: I have some of the same conditions to you and can completely empathise with losing a sporty/ active lifestyle. If we can support or advise you in any way, do let us know. For now, you may like to take a look at our PIP information page. Hope today is as kind as possible to you and your husband!0
Categories
- All Categories
- 14.1K Start here and say hello!
- 6.7K Coffee lounge
- 60 Games den
- 1.6K People power
- 87 Community noticeboard
- 21.7K Talk about life
- 5K Everyday life
- 47 Current affairs
- 2.2K Families and carers
- 818 Education and skills
- 1.7K Work
- 422 Money and bills
- 3.3K Housing and independent living
- 877 Transport and travel
- 650 Relationships
- 60 Sex and intimacy
- 1.3K Mental health and wellbeing
- 2.3K Talk about your impairment
- 843 Rare, invisible, and undiagnosed conditions
- 889 Neurological impairments and pain
- 1.9K Cerebral Palsy Network
- 1.1K Autism and neurodiversity
- 35.3K Talk about your benefits
- 5.6K Employment and Support Allowance (ESA)
- 18.3K PIP, DLA, and AA
- 6.4K Universal Credit (UC)
- 5K Benefits and income