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Capita assessment tomorrow - stressed

squizzelsquizzel Member Posts: 8 Listener
edited February 2018 in PIP, DLA and AA
Hi
thank you for letting me join this group. My wife has a capita assessment tomorrow at our home, and she is really stressing about it. She has uncontrolled epilepsy as well as angina, back and neck problems. Keeping fingers crossed.

Replies

  • Sue52Sue52 Member Posts: 78 Courageous
    Hi @squizzel

    Just to say I am sure everything will be fine. Hope it all goes well. Fingers crossed for you 

    best wishes 
    Sue 
  • AndreabAndreab Member Posts: 9 Listener
  • BillBill Member Posts: 32 Courageous
    Hi @squirrell ,
    Welcome to the online community! Reassure your wife that the Capita assessment should not cause additional stress - your wife may find that the assessor has no medical qualification and so she should try and get all in copy (perhaps she is happy for another person to be present during the assessment).
    You don't say the reason for the assessment - this community has lots of advice about assessments for PIP.
    Bill
  • squizzelsquizzel Member Posts: 8 Listener
    Thank you all, is it normal to just get a home visit? We didn't request one. But when the letter came through we had been given one.
  • squizzelsquizzel Member Posts: 8 Listener

    Thanks Bill.

    I will be there with her throughout the assessment as I am her full time carer. She had DLA higher rate awarded for life, but now because of the change she has to be re assessed. She has uncontrolled epilepsy, angina, neck back and hip problems, as well as high blood pressure.

  • BillBill Member Posts: 32 Courageous
    Hi @squizzel ,
    You're doing the right things - if you can 'speak' the language of the assessor, so much the better.
    Many in the community will not give advice on specifiic medical questions, but changing from the DLA (to  PIP) has been faced by many.

    Bill
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,731 Disability Gamechanger
    Good luck @squizzel
    We have a video about preparing for an assessment that might help


    Scope
    Senior online community officer
  • squizzelsquizzel Member Posts: 8 Listener
    Well assessment has now been done, Assessor was 15 minutes late and stayed for 1 1/2 hours. On the whole of it she seemed very nice, but that doesn't mean what she wrote down was I suppose. She said that she had read the fit diary that we sent in as part of the evidence and also picked up each one of her medication, and wrote down, type and how often it was to be taken. We had the standard questions about going out and walking, but was surprised that making a meal and using a knife was kept just to 2 questions.  I was allowed input especially when my wife struggled to answer, but to be honest she can't remember while she is having a fit. I made a point of saying that she can't administer emergency drugs while she is fitting either, that's my job to give rectal Diazepam when required to try and keep her from a hospital admission.
    So its a wait and see now and keep everything crossed. I will let you know how we get on with the decision when it comes. Also next week I am phoning and asking for a copy of the assessors report.
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Thanks for the update @squizzel, and glad to hear that things seemed to go well. As you say, requesting the assessors report is a good idea and will hopefully give you more of an insight into things. Do keep us updated and all the best to you and your wife! 
  • lillybellelillybelle Member Posts: 458 Pioneering
    Glad to know you got through this assessment okay. I have mine tomorrow again with uncontrolled epilepsy and a back injury resulted from a seizure.
      Hopefully things wil go okay, prob won’t have any sleep tonight worrying about it.
  • squizzelsquizzel Member Posts: 8 Listener
    Lillybelle, I wish you good luck for tomorrow, I can say try not to worry but I know that's impossible. If you have someone that can be with you that knows you and your seizures that can help. Lets face it when you are unconscious you don't know what is happening.  Pippascope I will definitely keep you updated, just got to wait for that brown envelope now. I was watching the news tonight and found it disturbing that a nurse that used to work with capita, said that some of her reports were returned from the DWP. She said that they made her change the report in their favour, So is it the assessors or the DWP who are telling lies.
    I do have a confession to make, I had 2 recorders running for the whole interview, one was right between the assessor and my wife, but both picked everything up really clearly. We will see what comes back.
  • squizzelsquizzel Member Posts: 8 Listener

    Update to our PIP claim.
    We have had a copy of the assessment report back now, it seems as though we had a truthful assesser. She got the epilim dose wrong, she put 900mg once a day instead of twice, but everything else was ok. We had downloaded the criteria forms with scores and crossed reference them with the report. My wife got 18 points for care and 24 for mobility, but as we all know that the decision maker has the last say. We are just waiting for that letter now, keeping everything crossed.

  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    Sounds positive

    CR
    Be all you can be, make  every day count. Namaste
  • lillybellelillybelle Member Posts: 458 Pioneering
    So pleased for you.
    your post has given a little hope. Although not heard anything. I’m on Epilim 500 twice a day and Lamotrigen at night. 
    Makes me so tired at times. Also irritates my skin.
    i also have a back injury due to falling having an epileptic seizure.
  • Government_needs_reformGovernment_needs_reform Member Posts: 858 Pioneering
    @squizzel Sounds like you will be OK and you've got the points I would be supeised if you don't  qualify. I done the same when I got my report and on the back where it states (review) will give a good indication if your in good hands and will recieve PIP.

    The CM will go with the assessment report and im confident you will be OK.

    Good luck.
    ⬇️
    I created one of the campaign election videos for Labour, and Jeremy Corbyn,
    This is a new version of Emeli Sande, Hope "You Are Not Alone
    I highlighted everything that's wrong with this country from benefits, NHS, UC etc, but now we have to put up with the hate now that is the Tories. 

    You can see the video here.
    https://m.youtube.com/watch?v=P5o8hRHh9IY


  • squizzelsquizzel Member Posts: 8 Listener

    Thanks all. the review bit on the back says that she recommends 3 years, as we have just got a new neurologist.
    Lillybelle I will keep everything crossed for you. Sometimes I don't think they can even imagine how Epilepsy can impact your life. Good luck and keep us informed.

     

  • Government_needs_reformGovernment_needs_reform Member Posts: 858 Pioneering
    squizzel said:

    Thanks all. the review bit on the back says that she recommends 3 years, as we have just got a new neurologist.

     

    @squizzel you will get an award (don't know how much of one) as it states a review in 3 years, one thing though is to remember yes it's 3 years but they review a year before an end date. I reckon the CM will follow the report you have.
    Good luck and let us know when you hear.
    ⬇️
    I created one of the campaign election videos for Labour, and Jeremy Corbyn,
    This is a new version of Emeli Sande, Hope "You Are Not Alone
    I highlighted everything that's wrong with this country from benefits, NHS, UC etc, but now we have to put up with the hate now that is the Tories. 

    You can see the video here.
    https://m.youtube.com/watch?v=P5o8hRHh9IY


  • squizzelsquizzel Member Posts: 8 Listener
    The letter came today and she has maximum for both parts. She has it for 4 years (reviewed after 3), that was great news. Then in the same pile of post I get one from Customer Compliance Office. I have to attend an interview. I don't know what its for but I have to take in my driving license, utility bill and bank statements to the local job centre, on the day they say. I am her full time carer and get carers allowance and income support. They are stopping any help we get with the mortgage in April, so I don't know what this is for.
    Oh well something else to worry about now. 
  • sdoc94sdoc94 Member Posts: 140 Pioneering
    @squizzel

    Do you mind if I ask what area of the UK you are in? I had my F2F a day after your wife at home by Capita and anxious waiting on result.
    Shady.
  • Paul7210Paul7210 Member Posts: 40 Courageous
    good luck @sdoc94 I hope you assessment goes ok, my wife has severe epilepsy and we faced two assessments in the home and well done @squizzel I really pleased your wife got the max of both elements, my wife got a 6 year award, and it's hard being a carer I hope you have been offered a carers and care needs assessment by social services? , I juggle work along side caring which keeps me busy. I wish anyone going through this stressful process for PIP all the best.
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