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Fibromyalgia, chronic fatigue syndrome - help with meal prep, personal care, aids for the house

I have fybromyalga and chronic fatigue syndrome. I am mostly house bound as I cannot go out on my own. My partner and youngest son live with me but they are both at work during the day. To be honest I am not coping very well and my doctor informed me that the only support available was in Aylesbury. As I live in Milton Keynes it is not an option. Does anyone know if I can get help with meal prep, personal care etc also any aids that can help me around the house.
Replies
You have found a safe place here and are among friends, so please don't be shy of telling us about yourself or of asking any questions. The better we get to know each other, the easier we may find ways to be of use to you.
Warmest best wishes to you,
Richard
There is a lot of information here about independent living and social care.
Senior online community officer
Hi @June63
If you need support and advice with trying to sort out social care at home to assist with some of those tasks you are struggling with I would suggest that you make contact with Milton Keynes Centre for Integrated Living
http://mkcil.org.uk/
Best Wishes
Jean
Jean Merrilees BSc MRCOT
You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist
I'm also in Milton Keynes and have Fibromyalgia and CFS/ME.
I agree with @Jean_Scope about contacting http://mkcil.org.uk they have helped me a few times and I can happily recommend them to everyone.
May I ask if you have had any assessment to establish what your needs are and what help may be available for you. I contacted the Community Occupational Therapy Services. I have had my bathroom converted to a shower after their assessment.
You can also be referred and or refer yourself for assessment by condaccont the Milton Keynes adult social care team for assessment.
Also contact Milton Keynes Age UK, they have helped me with a cleaner (there is a small charge) but I find it is worth it. I also know that there is a meals on wheels service in Milton Keynes (again for a small charge) ..
Feel free to contact me if I can help at all.
Hoping today finds you a little better than yesterday.
Blessings Be
I've only just joined, and read your post from February so I may be too late to give any advice if it's available in your area.
I also suffer from Fibro and CFS.
I live in Staffordshire so not sure if your local authority would do the same, but I had an assessment from the Socail Care Team and I get Direct Payments to help me pay for a PA, I also pay a little towards her too. She helps with all my personal care and preparing meals, taking me out for a coffee or wheeling me around the town in my wheelchair. She is not meant to do shopping or housework but that's something you can organise between yourselves.
I really do not know what I would do without her. There is some paperwork involved but the ROWAN ORGANISATION do the paperwork and sort out the PAs wages etc.
It's worth looking into as your local social care team may do something similar.
😘
So get that drs app and get your help! 😀 Xx
Whereas, OT's are registered professional educated to at least degree level to assist people to overcome barriers to being able to do the things they want or need to do by adapting the task, adapting the environment or re/skilling the individual. OT's work in many different settings including statutory organisations (NHS, Social Services, Education), charities and community organisations and in independent practice. Different settings will have different remits but certainly I would expect the Community OT to be able to advise and support June63 with resolving some of the issues with activities of daily living, assuming that she meets their criteria for service provision.
Best Wishes
Jean
Jean Merrilees BSc MRCOT
You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist
Hi June
I'm sorry to hear about your health problems.
I have MS and chronic fatigue syndrome. amongst other problems.
I got my GP to refer me to an OT who visited me at home and had aids that help me shower , i have a bench that fits across the bath so i can sit and shower, a bath seat so i can have a bath , a catcher to pick things up from the floor a chair where i can sit on to do take washing out . a raised toilet seat
and a bed lever to get out of beds.
The flat that i moved into already has
hand rails in the hallway and handrails in the bath
I pay for a private cleaner as i can't stand for long periods.
I hope that some help
Good luck
Hi i don't have fibromyalgia, its MS , with MS you do have extreme fatigue.
amongst other symptoms
only a neurologist can diagnose MS
http://www.fmauk.org/2-uncategorised/52-what-is-fibromyalgia
good luck