If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.
I have spina bifida and became self employed as I was labelled unreliable
I have spina bifida and hydrocephalus. I have long since given up trying to find a job as an 'employed' person due to the variability of my condition. Some days I am completely ' grounded' by pain or lack of sensation. Other days I am mostly ok, but need to rest every four hours or so due to poor sleep patterns caused by pain. I became self-employed about 20 years ago as I was labelled 'unreliable' due to poor timekeeping / attendance when I was most in pain. In this way I can manage my work without constantly having to take lots of (fairly unhelpful) drugs.