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SEMLE - CP

Anca
Anca Member Posts: 2 Listener
edited March 2018 in Cerebral palsy
Hi dear CP patient,

What are the best centre in Europe to perform sinle event multi level surgery? Any idea of how expensive such a surgery could be.

i have never been able to walk, stand, or even move from one surface to another, but I have high hopes on SEMLE.

Appreciated your answers,
anca

Comments

  • JennysDad
    JennysDad Member Posts: 2,299 Disability Gamechanger
    Hi @Anca and welcome to the community. Good to have you with us.
    I don't have a specific answer to your question, but bear with us and I'm sure somebody will get back to you about this.
    Looking up SEMLE on the web, it appears to be generally/better known as SEMLS (Single Event Multi Level Surgery)
    I hope we can help you find some answers.
    Warmest best wishes,
    Richard
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
    Hi @Anca, and welcome! I've moved this post into our Cerebral Palsy category.
  • Richard_Scope
    Richard_Scope Posts: 3,128

    Scope community team

    edited March 2018
    Hi @Anca
    SEMLS as you already know is Single Event Multi-Level Surgery. This procedure is deemed most successful in children. Any postoperative results will be dictated by how mobile you were before surgery.
    Finding an overall cost is difficult, as the cost is also based upon postoperative recovery treatment.
    I had my SEMLS surgery at the Robert Jones & Agnes Hunt Orthopaedic Hospital in the U.K. This was many years ago. 
    I would advise that you research the procedure thoroughly as it is not a quick fix.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • Anca
    Anca Member Posts: 2 Listener
    Many thanks for your answers.

    I have researched it as much as possible, however I would like to hear some real life experiences. Where have done the recovery?

    Thanks again.


  • Richard_Scope
    Richard_Scope Posts: 3,128

    Scope community team

    edited March 2018
    Dear @Anca
    I under went the procedure when I was 12 years old. The procedure consisted of two two main surguries - bone and then soft tissue. In total it would have been 23 separate surgeries. After the surgeries I had 11 months of intensive physiotheray at the hospital. Followed by continuous physiotherapy at home. I was away from home and school for 18 months. Although the procedure has benefitted me, at the time it created a huge emotional and financial strain on my family. I must also make it clear that everybody's surgery will be different as it is based upon how cerebral palsy effects them.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

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