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Frustration
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Barbiesnemesis said:Hi @Waylay, I can really empathise with what you have said; having to sit down and rest, do a bit more, sit down and rest - arghh - it drives me nuts. Don't get me started on the back spasms - nightmare! One of the things I was thinking though was, whether you could invite your friends over and have a 'cooking party' - you give out directions and they do the cooking You could join in with the bits you could manage too.
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The other day my washing line broke and my bedding landed in the mud. Not a drama for most but nearly gave me a break down. So much effort all gone to waste , and then I couldn't fix the stupid useless washing line.
There are so many things that need doing around my home and I used to be able to do it all
So very independent, never needed any help from anybody. Used to decorate the house move furniture, even really heavy stuff.
I was very house proud maybe a little OCD with it. I always done stuff straight away. Never put nothing off until tomorrow.
How things change. Frustrated doesn't even come close to how I feel
I'm learning how to be patient , and that the house doesn't have to be spotless and the decorating will eventually get done. Just not by me -
@janejr I hear that. So frustrating!
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What the so called examiner's don't understand is my disability is with me every day and not on just on bad days. My whole life revolves around it. I have to plan everything I do around it. So many days that I've planned to do something only to have to forget it as I'm to Ill and can only hobble around in pain.
I went out yesterday and slowly painfully hobbled around the market. Didn't go far but felt so good to be out
I knew I'd pay forgot today. Joints all swollen , not sure where hurts most.
So frustrated and only you all on scope can truly understand me. -
@janejr Yeah, I hear you on that. I sometimes want to yell at them, "When I say 'good' day, it's just better than my average day. A good day for me is still worse than your worst day, you judgemental, know-nothing 'Health Professional'".
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Hi delicious deborah I can relate to that. Able bodied people don't realise how lucky they are. I have watched people walking around standing chatting going out and socialising and I miss it. Its not the same when your in a wheelchair
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