Frustration

Waylay

Barbiesnemesis said:

Hi @Waylay, I can really empathise with what you have said; having to sit down and rest, do a bit more, sit down and rest - arghh - it drives me nuts. Don't get me started on the back spasms - nightmare! One of the things I was thinking though was, whether you could invite your friends over and have a 'cooking party' - you give out directions and they do the cooking   You could join in with the bits you could manage too. 

That's a great idea!! Thanks!! Sorry you suffer the same problems, but at least we're not alone!

janejr

The other day my washing line broke and my bedding landed in the mud. Not a drama for most but nearly gave me a break down. So much effort all gone to waste , and then I couldn't fix the stupid useless washing line.
There are so many things that need doing around my home and I used to be able to do it all
So very independent, never needed any help from anybody. Used to decorate the house move furniture, even really heavy stuff.
I was very house proud maybe a little OCD with it. I always done stuff straight away. Never put nothing off until tomorrow.
How things change. Frustrated doesn't even come close to how I feel
I'm learning how to be patient , and that the house doesn't have to be spotless and the decorating will eventually get done. Just not by me

Waylay

@janejr I hear that. So frustrating!

janejr

What the so called examiner's don't understand is my disability is with me every day and not on just on bad days. My whole life revolves around it. I have to plan everything I do around it. So many days that I've planned to do something only to have to forget it as I'm to Ill and can only hobble around in pain.

I went out yesterday and slowly painfully hobbled around the market. Didn't go far but felt so good to be out

I knew I'd pay forgot today. Joints all swollen , not sure where hurts most.
So frustrated and only you all on scope can truly understand me.

Waylay

@janejr Yeah, I hear you on that. I sometimes want to yell at them, "When I say 'good' day, it's just better than my average day. A good day for me is still worse than your worst day, you judgemental, know-nothing 'Health Professional'".

angelica285

Hi delicious deborah I can relate to that.  Able bodied people don't realise how lucky they are.  I have watched people walking around standing chatting going out and socialising and I miss it.  Its not the same when your in a wheelchair