If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Hi, my name is Amber! I'm looking for those who have Schizencephaly to chat to.

Amberms1
Member Posts: 3 Listener
I have 'mild' Cerebral Palsy with left side hemiplegia and scolisis caused by Schizencephaly. As far as I know there are no specific support group, only CP ones. I have just finished a course of neurophysiotherapy to continue at home.
I also have hypermobility in some of my major joints more on my right side.
Dyslexia. Polycystic ovarian Syndrome.
I know about the physical effects of Schizencephaly and was wondering about the other effects that I do not know about.
At the moment I am a stay at home mum to a wonderful daughter with Autism. Life is hectic! Once things have calmed down I want to see if I can find some kind of part time work as I want to feel more useful. I do volunteer a few hours a week in a youth group which I do enjoy but it is very tiring.
I would like some tips suggestions on how others manage. See if there's something I have not thought of.
Thank you
I also have hypermobility in some of my major joints more on my right side.
Dyslexia. Polycystic ovarian Syndrome.
I know about the physical effects of Schizencephaly and was wondering about the other effects that I do not know about.
At the moment I am a stay at home mum to a wonderful daughter with Autism. Life is hectic! Once things have calmed down I want to see if I can find some kind of part time work as I want to feel more useful. I do volunteer a few hours a week in a youth group which I do enjoy but it is very tiring.
I would like some tips suggestions on how others manage. See if there's something I have not thought of.
Thank you
Comments
-
Hello Amber @Amberms1 and a warm welcome to the community. It is very good to have you with us.
You are obviously and impressively 'on the ball', so I'm hoping it will be useful if I give you the list of categories here https://community.scope.org.uk/categories. I notice that you've engaged in at least one discussion already, and access to the list might make it a little easier for you to connect with others.
Life for you clearly is 'hectic' and I admire your handling of it very much.
The only contribution I think I can make is to be here and to listen, should you want to vent, rant or simply natter about anything that is of interest to you. I would be very proud if you could consider me a friend.
Warmest best wishes to you,
Richard
Brightness
Categories
- 55.3K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 160 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 840 Work and employment
- 600 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 303 Dating, sex, and relationships
- 270 Exercise and accessible facilities
- 22.3K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.8K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 706 Chronic pain and pain management
- 718 Rare, invisible, and undiagnosed conditions
- 774 Autism and neurodiversity
- 953 Mental health and wellbeing
- 314 Sensory impairments
Complete our feedback form and tell us how we can make the community better.