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Where r so many of us going so wrong

charlenecharlene Member Posts: 555 Pioneering
still wondering why so many of us with such an obvious problem with poor memory are getting nil points.  

My first thought is some how or another the question is being answered wrongly.  Time and time again  throughout my assessment papers, some comment relates to poor memory and yet nil points. Maybe it's because I remember  what I have forgotten to do. Maybe. I should be coming from another angle like the number of bottles of tomato ketchup in the cupboard, or the brand new microwave I bought and  stashed away only realising what I had done when I found it.  What do others think?
When the going gets tough, the tough get going.

Replies

  • MisscleoMisscleo Member Posts: 646 Pioneering
    I know the "many bottles tomato ketcup " thing. Bloody annoing. I find lots of stuff i dont remember buying. And buying and buying.
    I think the comcil should help us with getting rid of such items. Cos its our illness NOT us that as caused the problems 
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  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    I think you will need to tackle each descriptor and show specifically how a poor memory impacts on it, bearing in mind that a condition has to be present for the majority of time as well as the reliability factors.

    I can see that a case could be made for a need for prompting for descriptors
    1, 2, 4, 5, and 6 for a total of 12 points, but as with all hidden claims, proving it may be very difficult

    i welcome any other thoughts as it is a problem to quite a few people

    CR
    Be all you can be, make  every day count. Namaste
  • gillian29gillian29 Member Posts: 36 Courageous
    Hello @charlene,I’m glad I’m not the only one getting nil for memory even though my  specialist wrote me a letter stating my memory was getting worse as my condition got worse.I don’t know what we should be doing
  • charlenecharlene Member Posts: 555 Pioneering
    Hahaha, my gosh, that is so funny!  

    BUT, honestly this question is really getting to me.  As well as the food I have just given to the dog or thrown out, because I have forgotten I have bought it and is now rotten, or out of date.  It upsets me so much the amount of food I  throw out pounds worth of food, I keep saying to myself, remember  to eat the food you have before buying anymore in,  but that does not work.
    When the going gets tough, the tough get going.
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  • gillian29gillian29 Member Posts: 36 Courageous
    Some days I forget to take my medication,forget appointments,forget to buy cat food so she had to have red salmon this memory loss
    is beginning to get expensive lol
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    For me it was safety that I was awarded the points I got.
    Forgetting while cooking- high risk of death. 

    I almost feel that because memory infringes on so many conditions and is a side effect of medications, it's just ignored? 


    Some days I am just one big side effect.  :) 
    I suppose if I wrote that I didn't notice the pavement had ended and I was walking along the road instead that's no big deal. But that road was the motorway and it got me a lift with two men in fancy dress. Risk - very high. 
    Do not follow me, I don't know where I am going.
  • charlenecharlene Member Posts: 555 Pioneering
    Hello Cockny Rebel.  I scored on 1,4, and 6. And was very surprised as I was supplying evidence for disability not prompting. Actual that is a score of 50 per cent am I right.
    When the going gets tough, the tough get going.
  • charlenecharlene Member Posts: 555 Pioneering
    I have just checked and  the assessor says I need prompting, on 1, 3, 4, 6 and 9.  
    When the going gets tough, the tough get going.
  • charlenecharlene Member Posts: 555 Pioneering
    Hi Gillian, crazy isn't it! I am bafled.  
    When the going gets tough, the tough get going.
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    So a need for prompting should have scored you 10 points
    Be all you can be, make  every day count. Namaste
  • charlenecharlene Member Posts: 555 Pioneering
    If I am correct I have 12 pts, just waiting for the confirmation letter.  It the the Assessor who veered the result to that concludtion, I was. Supplying evidence for physical disability. What surprised me though she wrote I had no memory problems.
    When the going gets tough, the tough get going.
  • charlenecharlene Member Posts: 555 Pioneering
    Whistles if that is true why do they include the question, it is included for some reason
    When the going gets tough, the tough get going.
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    What I wrote and backed up on my forms was dismissed by the assessor. 
    He decided I had no problems and scored me zero for what I said i needed assistance/ prompting.
    Insight- you can keep yourself safe. If I didn't provide the reasons I needed help that would be not enough proof! 




    Do not follow me, I don't know where I am going.
  • charlenecharlene Member Posts: 555 Pioneering
    are you going to Tribunal?
    When the going gets tough, the tough get going.
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    edited March 2018
    Is that question to me? 
    No I'm not. I can't see how I can provide more proof that I have memory issues. It effects every aspect of my life not just the twelve descriptors- but- in relation to pip points the assessor felt I didn't need prompting because I knew my school etc.
    The only thought I did have, was to pay for an independent memory assessment and supply that? 
    Do not follow me, I don't know where I am going.
  • charlenecharlene Member Posts: 555 Pioneering
    Sorry Whistles, for omitting your name, and thanks for responding.  Not for a moment do I think I have solved the mystery of Nil Points, but I have been doing a little research on this subject  and my gut feeling is that we do have poor memories, but we are all doing similar things! I think to stand out from the crowd and get points,  we have to do something unusual,.  Maybe just maybe, my attempt to pay twice for my groceries.  
    When the going gets tough, the tough get going.
  • deb74deb74 Member Posts: 754 Pioneering
    hi charlene. i wondered about this. i have hydrochphalus which causes all sorts of problems such as short term memory loss and sometimes affects my speech. they don't seem to consider thing like that in the assessment. i was scored 0 for that part of my assessment. the assessor tried to catch me out. he listed 3 items and asked me 10 minutes later to tell him what they were i did remember the items but after the assessment i thought i should have got it it wrong on purpose. he also asked me to spell the word world backwards and i remember having to try it 7 times before i got it right then i was asked count backwards from 100 subtracting 7 from the last number which i also struggled with. eg 100-7=93 i kept getting it wrong. what planet are these people on!
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  • markyboymarkyboy Member Posts: 368 Pioneering
    My experience of pip assessment is that they dismiss what medication you are on how much pain you are in and GP letters are dismissed 
    They are only interested in how you manage your daily activities the more aids you have the more points you get .
    A perching stool in the kitchen gets 2 points ,a toilet frame or commode gets you points, a stool in the shower gets points but its not a matter of going out and buying these you have to get your GP to refer you to a occupational therapist for a assessment and if you need these items they will arrange to have them put in your home and give you paperwork to show the DWP
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    One issue I described was dismissed because I wasnt on medication, wasnt receiving outside help, didn't show signs at the assessment at that time. But strangely they say it's about your day to day living, but I am on meds it's a low dose.
    Do not follow me, I don't know where I am going.
  • charlenecharlene Member Posts: 555 Pioneering
    Him I found that.  The assessor dismissed my problem by saying on a low dose of pain killers.  Got it wrong though, don't know how, but I am on the top dose, some people on hear helped me.
    When the going gets tough, the tough get going.
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    charlene said:
    Him I found that.  The assessor dismissed my problem by saying on a low dose of pain killers.  Got it wrong though, don't know how, but I am on the top dose, some people on hear helped me.
    Actually my assessment just plopped on the mat. It's the DM that's dismissed everything so far. 
    Assessor scored me 6 which is what I was getting in between my odd 7 and 8 if I was having a bad day. 
    Do not follow me, I don't know where I am going.
  • lillybellelillybelle Member Posts: 458 Pioneering
    I got no points for memory loss because the assessor wasn’t at my home at a time when I have one of my daily numerous seizures that affect my short term memory as I’m in a period of sub consciousness for approx 10 minutes afterwards.
    How the hell can an assessor make this type of judgement and go against both my discription on what I suffer with and a GP,s letter stating the same?
    This isn’t the same as forgetting how many bottles of tomato ketchup I’ve bought.
    This is my life and I need help for safety reasons 
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    My actual assessment notes my short term memory as a condition in its own right, I think.
    It notes that's it's mentioned on the forms and in the interview, however I passed the tests accept the recall after the time delay.
    It goes on to say that they expect my conditions to be present at the review, but because it's variable they want to make sure i am on the correct award. 
    Assessor gave me points for budgeting, much appreciated because I thought I was being thick!!! DM dropped it.

    I think it's the 50% rule where you have to have the problems half of the time.

    What's written I am in agreement with me. I was self testing myself 6. 

    It says neurological disease. Makes me sound contagious.  :)
    Do not follow me, I don't know where I am going.
  • lillybellelillybelle Member Posts: 458 Pioneering
    My condition is daily so I’m sure the 50% rule applies.
    the help needed is for satety reasons so that also applies.
    and if I can’t remember what I am saying whilst having a conversation, then I obviously can’t do it in an acceptable time range.
      My problem is that I didn’t have a fit whilst she was sitting there
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    You are doing a MR aren't you? 
    I wish you all the best in getting the points. 

    I'm getting hold of my gp to see if any meds can be reduced if those are causing unnecessary problems. 

    Do not follow me, I don't know where I am going.
  • lillybellelillybelle Member Posts: 458 Pioneering
    Still no decision yet, but if it’s the same as report then yes, will book an appointment with our local disability solutions centre and take it from there
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