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Medication Dosage

whistleswhistles Member Posts: 1,590 Disability Gamechanger
Why does it matter? 
I thought it was whether or not you could or couldn't do the descriptors.
I am on a high dose for one condition ( apparently never actually given it a thought) 
Low dosage for the other which is one of their reasons for dismissing the condition among other things. ( will be lower soon I am in the process off cutting it down anyway)

Everyone's tolerance / needs are different. So the dose is surely only part of the picture. But it gets mentioned maybe just because. 
Do not follow me, I don't know where I am going.

Replies

  • debsidoodebsidoo Member Posts: 327 Pioneering
    Hi Whistles.
    The reason dosage of medication is mentioned is probably because some can have pretty strong side effects which can impact on your abilities.Such as dizziness,frequent nausea,tiredness,insomnia.
    All these can impact on your mood,concentration and ability to function.
       Debsidoo.x
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    One of mine is causing adverse "check with your doctor" side effects. Its being cutting down. 
    They ignored the fact I was on it anyway so won't make any difference if I am to pip. 

    Do not follow me, I don't know where I am going.
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    Medication and doseage, especially pain relief, either go toward backing up or refuting the condition you claim to have.
    An assessor might dispute that you are in chronic 24 hour pain if you take two asprin a day.
    Or accept that you are if on 60mg morpine and 300mg pregabalin every twelve hours
    It is wrong to make some of these assumptions without further investigation but they usually take the easy route

    CR
    Be all you can be, make  every day count. Namaste
  • charlenecharlene Member Posts: 555 Pioneering
    Also it can also depend on your illness.  I take 5 Amitripiline at night for chronic pain, due to Fibromyalgia,  it is thought it is something in the brain which causes Fibromyalgia. 

    I was on morphine patches, but had to come of them due to bad reaction to them.
    When the going gets tough, the tough get going.
  • JurphJurph Member Posts: 346 Pioneering
    @charlene my assessor noted Ibuprofen and paracetamol - which of course meant I was perfectly fine.

    They completely ignored my allergies to antidepressants.
  • charlenecharlene Member Posts: 555 Pioneering
    So sorry to hear that Jurph.  Can't you fight back saying they are ignoring your allergies.  

    I can't take Ibuprofen(kidneys) so have o put up with flare ups.
    When the going gets tough, the tough get going.
  • JurphJurph Member Posts: 346 Pioneering
    I am. I've told them in my application form, at the assessment, at MR and will have to do it again at Tribunal. 

    I rarely take over the counter pain meds any more as it doesn't do anything. I'm on Tramadol now. I'm recently diagnosed so still working with the GP to find something that helps.
  • charlenecharlene Member Posts: 555 Pioneering
    Good for you.  I am not feeling brilliant and most probably will have worse days to come.  Just so incensed with their cruelty.
    When the going gets tough, the tough get going.
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    I've been on these a few years now and I will just see how I do on less/ come off and look for something else. 
    My guess is it will take a few weeks to notice any difference. 
    Do not follow me, I don't know where I am going.
  • JurphJurph Member Posts: 346 Pioneering
    Me too. The stress of this whole thing has brought on a bad flare up. I thought I wouldn't have the energy to fight but the injustice of it all is spurring me on.
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    I have contacted my gp with the stress. It won't just be me, lots of us are. 
    I feel like I have gone through a mangle and been hung out to dry. I'm so mentally tired.
    Do not follow me, I don't know where I am going.
  • hallihalli Member Posts: 6 Listener
    HELLO GUYS its a point that you are challenging whats been wrote about you.dont agree with whats been said questions and answers are wrong or way off the mark .assumption is there not what you say its what truths are said.i felt dissmisst.conversations answers i think hes taling about someone else and not me.answers i gave and what he wrotewas way out of line .and yeah if i saw my answers he wrote id strike me off to halli

  • lillybellelillybelle Member Posts: 458 Pioneering
    I told my assessor that because I take 2 typed of epileptic drugs they have side affects which are well known
    one being a skin rash- hence the cetraben cream prescribed by doc.
    my skin becomes over sensitive and when I shower etc it causes a seizure due to the shock
    this was never mentioned.
    in fact she wrote no side effects to medication.
    Amazing - don’t know why I bothered telling her.
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    Yes I got the same because I couldn't prove it effected the descriptors. 
    I think that's the issues, yes you use cream and yes it causes that and we scored you for washing. 
    Then they move on. 
    So they did take note of it. 
    Do not follow me, I don't know where I am going.
  • lillybellelillybelle Member Posts: 458 Pioneering
    I’m afraid in my report she didn’t take note as she stated no side effects.
    i was actually marked down as instead of giving me points for my daughter helping me in and out of shower (3)
    she said that she assists on washing lower part of body because of back injury (2).
    very clever aren’t they?
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    edited March 2018
    Yes mostly definately.
    I scored zero for the medication help because he decided I didn't have a cognitive issue because I hadn't supplied it. No memory proof despite condition and meds being known for it.

    I can't get the test done in a month. So declined to do the MR because I have no other evidence to include.
    Do not follow me, I don't know where I am going.
  • lillybellelillybelle Member Posts: 458 Pioneering
    I too scored zero for help with medication. My husband gives me my medication same time morning/ night.
    then he is happy that he knows I haven’t forgotten or taken a double dose as I couldn’t remember if I had taken any.
    my medication can’t be put into boxes.
    this she said I can do myself most of the time.
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  • lillybellelillybelle Member Posts: 458 Pioneering
    Apparently I can converse with others without prompting because I speak to my own family.
    my own family are the ones who do the prompting A’s absence seizures cause me to have no hearing or sight for about 10-15 sec at a time.
    im completely oblivious to any conversation forgetting what was said or what I was saying.again this is a safety concern.

  • [Deleted User][Deleted User] Posts: 1,756 Listener
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  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    Victoriad said:
    whistles said:
    I've been on these a few years now and I will just see how I do on less/ come off and look for something else. 
    My guess is it will take a few weeks to notice any difference. 
    Hi my wee pal 
    I don’t want to pry .....but I hope you are not reducing your medication off your own bat,without consulting the GP or other specialist.

    If you are reducing under the watchful supervision of your GP or specialist then go for it.


    With gp's knowledge.  :)
    Do not follow me, I don't know where I am going.
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    Victoriad said:
    If anyone is thinking of altering their dosage of medication it should be done with the go ahead from the GP or specialist under supervision as withdrawal of meds can cause severe effects.


    I said I have been in touch with gp.  :)
    Do not follow me, I don't know where I am going.
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    Apparently I can converse with others without prompting because I speak to my own family.
    my own family are the ones who do the prompting A’s absence seizures cause me to have no hearing or sight for about 10-15 sec at a time.
    im completely oblivious to any conversation forgetting what was said or what I was saying.again this is a safety concern.

    This is the citizens advice re that question.

    https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-claim/fill-in-form/9-communicating-verbally/ 

    I have a problem with speaking to others so I am understood. But that's not four out of seven days that they require. It's not severe enough a problem and they are solely talking about verbally. I bet you £1 my aid isn't on their accepted list of items either, so I don't have to communicate verbally. 
    Do not follow me, I don't know where I am going.
  • lillybellelillybelle Member Posts: 458 Pioneering
    Well mine is every day and is there on the list.

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