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Hi, my name is gkay! mild cerebral palsy

gkaygkay Member Posts: 6 Listener
in Cerebral Palsy
Hi id like to someone to just confirm to me mild cerebral palsy is not seen as a  disability even tho my son has been given a buggy as he can't walk far because of the pain and how it started to effect his hips ,he wears a splint ,has a bath aid to support him , i look forward to your comments thanks Graham
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Replies

  • JennysDadJennysDad Member Posts: 2,308 Disability Gamechanger
    Hi Graham @gkay and welcome to the community. It's good to have you with us.
    I don't have the skills to answer your specific question, but there are people here who do and who will be in touch with you as soon as possible.,
    I'm going to tag a gentleman in here who will be interested in your post and probably able to help you. @speedincaesar
    Bear with us, and we will do what we can to help.
    Warmest best wishes to you and to your son,
    Richard
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  • Richard_ScopeRichard_Scope Posts: 2,829

    Scope community team
    Hi @gkay
    Good to meet you and thank you for your post. Cerebral Palsy in all its degrees of severity is considered a disability. Are you having problems accessing services that your son needs?
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
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  • gkaygkay Member Posts: 6 Listener
    Hello speed to be honest the services he receives is brilliant,it was that i tried claiming disability for him ,and was refused ,ive also just been to a tribunal and was refused thanks for looking im not to sure what my next step is going to be at the moment 
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  • Richard_ScopeRichard_Scope Posts: 2,829

    Scope community team
    Hi @gkay
    I am not a benefits expert but I am surprised to read that your son was refused. I will include a link here that has advice on making a claim for DLA:
    https://contact.org.uk/media/1172324/claiming_dla_for_children.pdf 

    Also, here is a link to our benefits advice discussion:
    https://community.scope.org.uk/categories/ask-a-benefits-advisor 


    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
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  • gkaygkay Member Posts: 6 Listener
    Thank you speed il post in there tonight when i get in from work cheers
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  • reap123reap123 Member Posts: 6 Listener
    I was in a buggy until I was 4. Don’t be surprised if you here about Botox treatment or still need bathing aid. I can’t wash my hair by myself. I struggle with things like that at 12. Muscle lengthening is also an option. Try orthotic insoles if the splints get painful like my splint did. Try a crutch or crutches for long distance or let him lean on you if needed. Try things like swimming because it’s good physio for the muscles. Don’t be surprised as well if walking becomes worse around when he makes the main growth spurts at. 12-14. It’s happening to me. Sorry it’s long but that’s just a look into the future for someone with mild cp. 

    Rachael
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  • reap123reap123 Member Posts: 6 Listener
    Also, when applying for DLA, put what he’d need on a bad day. That’s what a solicitor told my parents to do. It worked for them. 
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